Bransteter Irina, McVoy Molly, Miller David W, Gubitosi-Klug Rose A, Segall Tracy L, Divan Mina K, Surdam Jessica, Sajatovic Martha, Dusek Jeffery A
Case Western Reserve University School of Medicine, Cleveland, Ohio.
University Hospitals Cleveland Medical Center, Cleveland, Ohio.
JAACAP Open. 2024 Feb 15;2(3):208-216. doi: 10.1016/j.jaacop.2024.01.005. eCollection 2024 Sep.
There has been little to no qualitative research done with adolescents and young adults (AYA) with type 2 diabetes (T2D) that can guide creation of interventions for this demographic. Using qualitative research methods, a novel mind-body intervention called Intervention for Early Onset Type 2 Diabetes (INTEND) has been developed for AYA aged 15 to 20 years, with the goal of improving self-management and coping skills, by enhancing routine care with augmented education coupled with mind-body skills.
Qualitative interviews with AYA 15 to 20 years of age with T2D, their parents, and professionals caring specifically for this population were done through a focus group model. Transcripts were created, depersonalized, and coded using a Consensual Qualitative Research (CQR) method. Identified themes then guided the creation of course materials that included education about self-management of T2D and how to use the 4 mind-body technique toward self-care and regulation.
The qualitative approach used in the development of this intervention revealed important findings in understanding key barriers faced by this group, key facilitators that improve their quality of life, and core components of an intervention that would be acceptable to them.
Results of this qualitative study helped craft an intervention tool that can subsequently be deployed and evaluated for effectiveness. Findings of the qualitative research model allow us to better understand the lived experience of AYA living with T2D.
•Stigma of type 2 diabetes in adolescents may interfere with patients' ability to adequately adhere to treatment recommendations•Clinicians need to identify social supports for adolescents with type 2 diabetes•Identifying family members and including them in treatment plans may help adolescents with type 2 diabetes.
针对患有2型糖尿病（T2D）的青少年和青年（AYA）开展的定性研究极少，无法为针对该人群的干预措施制定提供指导。本研究采用定性研究方法，为15至20岁的AYA开发了一种名为“早发性2型糖尿病干预（INTEND）”的新型身心干预措施，旨在通过强化常规护理、增加教育以及结合身心技能来提高自我管理和应对技能。
通过焦点小组模型，对15至20岁患有T2D的AYA、他们的父母以及专门照顾该人群的专业人员进行了定性访谈。使用共识定性研究（CQR）方法创建、去个性化并编码访谈记录。然后，确定的主题指导了课程材料的创建，这些材料包括有关T2D自我管理的教育以及如何使用4种身心技术进行自我护理和调节。
在开发此干预措施过程中使用的定性方法揭示了在理解该群体面临的关键障碍、改善其生活质量的关键促进因素以及他们能够接受的干预措施的核心组成部分方面的重要发现。
这项定性研究的结果有助于精心设计一种干预工具，随后可对其进行部署和有效性评估。定性研究模型的结果使我们能够更好地理解患有T2D的AYA的生活经历。
•青少年2型糖尿病的污名化可能会干扰患者充分遵守治疗建议的能力•临床医生需要为患有2型糖尿病的青少年确定社会支持•识别家庭成员并将他们纳入治疗计划可能会帮助患有2型糖尿病的青少年。
