Shade Haley, Robertson Harrop A, McPhalen Donald, Roach Pamela
Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Section of Pediatric Plastic Surgery, Department of Surgery, University of Calgary, Calgary, Alberta, Canada.
Plast Surg (Oakv). 2024 Apr 2:22925503241241088. doi: 10.1177/22925503241241088.
Our small-scale qualitative study sought to explore the experiences of Indigenous patients receiving care for cleft lip and/or palate at a multidisciplinary clinic. There currently are no published studies that demonstrate the experiences of cleft lip and/or palate patients receiving care in multidisciplinary clinics in Canada. This work is foundational to informing future care in a way that is reflective and cognizant of Indigenous ways of life and lived experiences. Participants were recruited via purposive and snowball sampling through community networks and public advertising in relevant healthcare spaces. Semi-structured interviews were completed; transcribed verbatim and descriptive codes were generated using Indigenist research methodologies through the Blackfoot medicine wheel. Five participants that included patients, parents of patients with cleft lip and/or palate, and Indigenous health liasions were interviewed. Participants indicated a lack of spiritual health, the physical demands of having a cleft lip and/or palate on a patient and their families, the fear and unknown associated with a new cleft lip and/or palate diagnosis, and lack of cultural support, awareness and racism may negatively impact mental health. Indigenous patients must receive cleft lip and/or palate care that is cognizant of both their cultural needs identified in our study but also reflective of the ways in which health may be conceptualized for Indigenous patients. The following models of care suggested in our study must also seek to address historic mandates that include UNDRIP and the Truth and Reconciliation Commission's Calls to Action.
我们的小规模定性研究旨在探索原住民患者在多学科诊所接受唇腭裂治疗的经历。目前尚无已发表的研究表明加拿大唇腭裂患者在多学科诊所接受治疗的经历。这项工作对于以反映和认识原住民生活方式及生活经历的方式为未来的治疗提供信息至关重要。通过社区网络以及在相关医疗场所进行公共宣传，采用目的抽样和滚雪球抽样的方法招募参与者。完成了半结构化访谈；逐字转录，并通过黑脚印第安人医学轮，运用原住民研究方法生成描述性代码。采访了五名参与者，包括患者、唇腭裂患者的父母以及原住民健康联络人。参与者表示，精神健康的缺失、唇腭裂给患者及其家庭带来的身体负担、对新的唇腭裂诊断的恐惧和未知，以及文化支持的缺乏、认知不足和种族主义可能会对心理健康产生负面影响。原住民患者接受唇腭裂治疗时，必须既要考虑我们研究中确定的他们的文化需求，也要反映出对原住民患者健康的概念化理解方式。我们研究中提出的以下护理模式还必须努力应对包括《联合国土著人民权利宣言》和真相与和解委员会行动呼吁在内的历史要求。
