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J Pediatr Nurs. 2024 May-Jun;76:132-139. doi: 10.1016/j.pedn.2024.02.015. Epub 2024 Feb 23.
2
"Machine-Dependent": The Lived Experiences of Patients Receiving Hemodialysis in Pakistan.“依赖机器”:巴基斯坦接受血液透析患者的生活经历
Glob Qual Nurs Res. 2022 Nov 15;9:23333936221128240. doi: 10.1177/23333936221128240. eCollection 2022 Jan-Dec.
3
Thalassemia Major and Associated Psychosocial Problems: A Narrative Review.重型地中海贫血及相关心理社会问题:叙述性综述
Iran J Public Health. 2022 Jan;51(1):12-18. doi: 10.18502/ijph.v51i1.8287.
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Advances in measuring pediatric overall health: the PROMIS® Pediatric Global Health scale (PGH-7).儿科整体健康测量的进展: PROMIS®儿科全球健康量表(PGH-7)。
Eur J Pediatr. 2022 May;181(5):2117-2125. doi: 10.1007/s00431-022-04408-9. Epub 2022 Feb 15.
5
Quality of Life and Related Factors in β-Thalassemia Patients.β-地中海贫血患者的生活质量及相关因素。
Hemoglobin. 2021 Jul;45(4):245-249. doi: 10.1080/03630269.2021.1965617. Epub 2021 Aug 19.
6
Hemodialysis as long term treatment: Patients satisfaction and its impact on quality of life.长期血液透析治疗:患者满意度及其对生活质量的影响。
Pak J Med Sci. 2021 Mar-Apr;37(2):398-402. doi: 10.12669/pjms.37.2.2747.
7
Comparison of hemodialysis and peritoneal dialysis patients' dietary behaviors.血液透析和腹膜透析患者饮食行为的比较。
BMC Nephrol. 2020 Mar 10;21(1):91. doi: 10.1186/s12882-020-01744-6.
8
Mental health and psychosocial adjustment in pediatric chronic kidney disease derived from the KNOW-Ped CKD study.儿科慢性肾脏病患者的心理健康和心理社会适应:来自 KNOW-Ped CKD 研究。
Pediatr Nephrol. 2019 Oct;34(10):1753-1764. doi: 10.1007/s00467-019-04292-w. Epub 2019 Jun 20.
9
General Health and Life Satisfaction in Children With Chronic Illness.儿童慢性病患者的总体健康和生活满意度。
Pediatrics. 2019 Jun;143(6). doi: 10.1542/peds.2018-2988. Epub 2019 May 6.
10
Quality of Life of Pakistani Children with β-Thalassemia Major.患有重型β地中海贫血的巴基斯坦儿童的生活质量
Hemoglobin. 2018 Sep-Nov;42(5-6):320-325. doi: 10.1080/03630269.2018.1553183. Epub 2019 Jan 30.

地中海贫血患儿和接受血液透析患儿的心理困扰、总体健康状况及生活满意度

Psychological distress, General health and Life satisfaction among children with Thalassemia and children undergoing Haemodialysis.

作者信息

Ramzan Aansah, Ahmad Saima

机构信息

Aansah Ramzan, Department of Applied Psychology, Lahore College for Women University, Lahore, Pakistan.

Saima Ahmad, Department of Applied Psychology, Lahore College for Women University, Lahore, Pakistan.

出版信息

Pak J Med Sci. 2024 Nov;40(10):2309-2312. doi: 10.12669/pjms.40.10.9412.

DOI:10.12669/pjms.40.10.9412
PMID:39554670
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11568742/
Abstract

OBJECTIVE

To compare and find out the relationship between psychological distress, general health and life satisfaction among children with thalassemia and children undergoing dialysis.

METHOD

The current study utilized cross sectional research design. A representative group of children with Thalassemia (n=60) and children undergoing dialysis (n=60) with ages ranging from 6-14 years were included in the sample. The sample was drawn from Children's Hospital and Sundas Foundation from February 2023 to August 2023 through a purposive sampling technique.

RESULTS

Psychological distress significantly correlates negatively with general health (-.34**) and life satisfaction (-.44**) in Children with Thalassemia. A significant negative relationship is also observed between psychological distress and general health (-.43**) and life satisfaction (-.54**) in Children undergoing Hemodialysis. Children undergoing hemodialysis experience more psychological distress whereas children with thalassemia have better general health. However, no significant difference was found in life satisfaction. The findings of the present study will be helpful for healthcare professionals and clinical psychologists to develop strategies and training programs which can increase resilience among patients. Training the patients and caregivers regarding how to fight chronic illnesses will lead to an improvement in their quality of life.

CONCLUSION

Psychological distress is higher in children undergoing hemodialysis and general health is also not good but the level of satisfaction is almost equal between the two groups. This is justified that chronic illnesses do not preclude children from leading happy and satisfying lives.

摘要

目的

比较并找出地中海贫血患儿与接受透析治疗的患儿在心理困扰、总体健康和生活满意度之间的关系。

方法

本研究采用横断面研究设计。样本纳入了60名年龄在6至14岁之间的地中海贫血患儿和60名接受透析治疗的患儿。该样本于2023年2月至2023年8月通过目的抽样技术从儿童医院和桑达斯基金会抽取。

结果

在地中海贫血患儿中,心理困扰与总体健康(-.34**)和生活满意度(-.44**)显著负相关。在接受血液透析的患儿中,心理困扰与总体健康(-.43**)和生活满意度(-.54**)之间也观察到显著的负相关。接受血液透析的患儿心理困扰更多,而地中海贫血患儿总体健康状况更好。然而,在生活满意度方面未发现显著差异。本研究结果将有助于医护人员和临床心理学家制定策略和培训计划,以提高患者的心理韧性。对患者及其照顾者进行如何应对慢性病的培训将改善他们的生活质量。

结论

接受血液透析的患儿心理困扰程度较高,总体健康状况也不佳,但两组的满意度水平几乎相等。这证明慢性病并不妨碍儿童过上幸福和满意的生活。