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姑息治疗癌症患者的照顾者负担:跨文化视角

Caregiver Burden of Palliative Cancer Patients: A Cross-Cultural Perspective.

作者信息

Kılıçaslan Kimya, Küçükakgün Hilalnur, Alikan Berkay

机构信息

Department of Medical Nursing, İstanbul University-Cerrahpaşa, Institute of Graduate Studies, İstanbul, Turkey.

Department of Medical Nursing, İstanbul University-Cerrahpaşa, Florence Nightingale Faculty of Nursing, İstanbul, Turkey.

出版信息

Florence Nightingale J Nurs. 2024 Feb 28;32(1):110-115. doi: 10.5152/FNJN.2024.23058.

Abstract

Although the burden of caregiving is universal among people caring for advanced cancer patients, the perception of burden and the impact on individuals vary according to the society in which patients and caregivers are located. The characteristics of caregivers and the dimensions of burden they experience are influenced by the structure of each society. Therefore, the burden of caregivers is shaped by the situation in each country and its cultural perspective. Reducing the burden on caregivers and supporting individuals can make the patients they care for feel better. For this reason, caregivers should receive social, psychological, and economic support from society, the government, and their families, and efforts should be made to reduce the burden of caregiver assistance. To protect and improve the health of caregivers, health personnel should provide training on effective caregiving methods based on the needs of caregivers. It is especially important to support the patient's family members when the patient is in the terminal phase and to prepare them for the grieving process. The aim of this study is to better understand the level of caregiver burden and to guide researchers by providing a cross-cultural perspective.

摘要

尽管照顾晚期癌症患者的人的护理负担是普遍存在的,但负担的认知以及对个人的影响会因患者和照顾者所处的社会而有所不同。照顾者的特征以及他们所经历的负担维度受到每个社会结构的影响。因此,照顾者的负担是由每个国家的情况及其文化视角所塑造的。减轻照顾者的负担并支持个人可以让他们所照顾的患者感觉更好。出于这个原因,照顾者应该从社会、政府和家庭获得社会、心理和经济支持,并且应该努力减轻照顾者协助的负担。为了保护和改善照顾者的健康,卫生人员应该根据照顾者的需求提供关于有效护理方法的培训。当患者处于终末期时,支持患者的家庭成员并让他们为悲伤过程做好准备尤为重要。本研究的目的是通过提供跨文化视角来更好地理解照顾者负担的程度并为研究人员提供指导。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ccc2/11059603/0dc868b81cb1/fnjn-32-1-110_f001.jpg

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