Department of Physical Medicine and Rehabilitation, MetroHealth System, 2500 MetroHealth Drive, Cleveland, OH 44109, USA; VA Northeast Ohio Healthcare System, 10701 East Boulevard, Cleveland, OH, USA. Electronic address: https://twitter.com/FerberMD.
Department of Physical Medicine and Rehabilitation, MetroHealth System, 2500 MetroHealth Drive, Cleveland, OH 44109, USA; Case Western Reserve University School of Medicine, 10900 Euclid Avenue, Cleveland, OH 44106, USA.
Phys Med Rehabil Clin N Am. 2025 Feb;36(1):139-154. doi: 10.1016/j.pmr.2024.08.002. Epub 2024 Oct 18.
The individual with spinal cord injury is the most important member of the interdisciplinary team of health care professionals who provide care and researchers who progress treatments. The consumer voice is critical to understanding priorities and preferences. A literature search was conducted to identify consumer-level contribution, yielding 68 articles. Functional recovery priorities of motor and bladder/bowel function were universal. Priorities of secondary complications mirrored functional recovery, highlighting the impact that mitigating secondary complications can have on functional recovery. Imbedded within interventional preferences are those priorities, balanced between risks and benefits. Improving independence was consistently weighed against fear of functional decline.
脊髓损伤患者是提供护理的跨学科医疗团队中最重要的成员,也是推进治疗的研究人员。消费者的声音对于了解优先事项和偏好至关重要。进行了文献检索以确定消费者层面的贡献,共得到 68 篇文章。运动和膀胱/肠道功能的功能恢复优先级是普遍的。次要并发症的优先级反映了功能恢复,突出了减轻次要并发症对功能恢复的影响。干预措施的偏好中包含这些优先级,在风险和收益之间取得平衡。提高独立性与对功能下降的恐惧始终保持平衡。