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本文引用的文献

1
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2
Ambient temperature and nervous system diseases-related mortality in Japan from 2010 to 2019: A time-stratified case-crossover analysis.2010 年至 2019 年日本环境温度与神经系统疾病相关死亡率:时间分层病例交叉分析。
Sci Total Environ. 2023 Apr 1;867:161464. doi: 10.1016/j.scitotenv.2023.161464. Epub 2023 Jan 6.
3
Hyperhidrosis in Parkinson's disease: a 3-year prospective cohort study.帕金森病中的多汗症:一项为期 3 年的前瞻性队列研究。
J Eur Acad Dermatol Venereol. 2022 Jul;36(7):1104-1112. doi: 10.1111/jdv.18072. Epub 2022 Mar 23.
4
Reducing the health effects of hot weather and heat extremes: from personal cooling strategies to green cities.减轻高温天气和极端高温对健康的影响:从个人降温策略到绿色城市。
Lancet. 2021 Aug 21;398(10301):709-724. doi: 10.1016/S0140-6736(21)01209-5.
5
Climate change and neurodegenerative diseases.气候变化与神经退行性疾病。
Environ Res. 2021 Oct;201:111511. doi: 10.1016/j.envres.2021.111511. Epub 2021 Jun 12.
6
'Striving for normality' when coping with Parkinson's disease in everyday life: A metasynthesis.在日常生活中应对帕金森病时追求“正常化”:综合分析。
Int J Nurs Stud. 2021 Jun;118:103923. doi: 10.1016/j.ijnurstu.2021.103923. Epub 2021 Mar 4.
7
Electrodiagnostic assessment of the autonomic nervous system: A consensus statement endorsed by the American Autonomic Society, American Academy of Neurology, and the International Federation of Clinical Neurophysiology.自主神经系统的电诊断评估:一份由美国自主神经学会、美国神经病学学会和国际临床神经生理联合会认可的共识声明。
Clin Neurophysiol. 2021 Feb;132(2):666-682. doi: 10.1016/j.clinph.2020.11.024. Epub 2020 Dec 22.
8
Thermoregulation in Parkinson disease.帕金森病中的体温调节
Handb Clin Neurol. 2018;157:715-725. doi: 10.1016/B978-0-444-64074-1.00043-4.
9
Best Practices for Developing and Validating Scales for Health, Social, and Behavioral Research: A Primer.健康、社会和行为研究量表开发与验证的最佳实践:入门指南。
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10
Seasonal temperature is associated with Parkinson's disease prescriptions: an ecological study.季节温度与帕金森病处方有关:一项生态学研究。
Int J Biometeorol. 2017 Dec;61(12):2205-2211. doi: 10.1007/s00484-017-1427-9. Epub 2017 Aug 30.

帕金森病患者热敏感量表。

A Heat Sensitivity Scale for People with Parkinson's Disease.

作者信息

Hunt Andrew P, Pagnussat Aline Souza, Lehn Alexander, Moore Daniel, Schweitzer Daniel, Laakso E-Liisa, Hennig Ewald, Morris Meg E, Kerr Graham, Stewart Ian

机构信息

School of Biomedical Sciences, Faculty of Health, Queensland University of Technology (QUT), Brisbane, Queensland, Australia.

Department of Physical Therapy, Universidade Federal de Ciências da Saúde de Porto Alegre, Porto Alegre, Brazil.

出版信息

Mov Disord Clin Pract. 2025 Mar;12(3):325-332. doi: 10.1002/mdc3.14281. Epub 2024 Nov 27.

DOI:10.1002/mdc3.14281
PMID:39601459
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11952944/
Abstract

BACKGROUND

People living with Parkinson's disease (PD) commonly experience heat sensitivity-worsening symptoms and restricted daily activities in heat.

OBJECTIVE

This study aimed to develop a scale of heat sensitivity for people with PD.

METHODS

Through a search of the scientific literature and online forums, we developed 41 items relating to experiences of heat for people with PD to assess heat sensitivity. A panel of experts was then consulted to review the scale items critically. After two rounds of review, the scale was refined to 36 items with an overall scale content validity index of 0.89. Via an online survey, 247 people with PD responded to the items.

RESULTS

The items were examined with exploratory factor analysis to determine the underlying factors therein. After several iterations, a simple structure was achieved with 29 items loading uniquely onto one of four factors: daily activities, sweating and exercise, heat-related illness, and symptoms and medications. The model had acceptable to excellent fit statistics (root mean square error of approximation = 0.073 [90% confidence interval 0.067-0.081], root mean square of the residuals = 0.03, comparative fit index = 0.93, and Tucker-Lewis index = 0.91), and each factor showed high reliability (Cronbach's α ≥0.89). Factor and total scale scores were significantly higher among those reporting sensitivity to heat and poor health status.

CONCLUSION

This new heat sensitivity scale for people living with PD can enable health professionals and clients to assess the severity and impact of heat sensitivity.

摘要

背景

帕金森病(PD)患者通常会经历热敏感性,症状在高温时会恶化,并且日常活动在高温环境中受到限制。

目的

本研究旨在为帕金森病患者开发一种热敏感性量表。

方法

通过检索科学文献和在线论坛,我们制定了41项与帕金森病患者热体验相关的条目,以评估热敏感性。随后咨询了一个专家小组,对量表条目进行严格审查。经过两轮审查,量表精简为36项,总体量表内容效度指数为0.89。通过在线调查,247名帕金森病患者对这些条目进行了回应。

结果

对这些条目进行探索性因素分析,以确定其中潜在的因素。经过几次迭代,得到了一个简单结构,其中29项独特地加载到四个因素之一上:日常活动、出汗与运动、与热相关的疾病以及症状与药物。该模型具有可接受至优秀的拟合统计量(近似均方根误差 = 0.073 [90% 置信区间 0.067 - 0.081],残差均方根 = 0.03,比较拟合指数 = 0.93,塔克 - 刘易斯指数 = 0.91),并且每个因素都显示出高可靠性(克朗巴哈α系数≥0.89)。在报告对热敏感和健康状况较差的人群中,因素得分和总量表得分显著更高。

结论

这种新的帕金森病患者热敏感性量表能够使医疗专业人员和患者评估热敏感性的严重程度及其影响。