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为性少数和性别少数个体提供姑息治疗:医生态度与经历的定性访谈研究

Providing Palliative Care for Sexual and Gender Minority Individuals: A Qualitative Interview Study of Physicians' Attitudes and Experiences.

作者信息

Coholan Alexandre, Sanders Justin J, Candrian Carey

机构信息

McGill University, Montreal, Canada.

Department of Family Medicine, McGill University, Montreal, Canada.

出版信息

J Palliat Med. 2025 Feb;28(2):224-233. doi: 10.1089/jpm.2024.0283. Epub 2024 Nov 28.

Abstract

Sexual and gender minority (SGM) individuals face increased risk of receiving suboptimal care, including palliative care. Despite research demonstrating strategies to improve care, little is known about the experiences of palliative care clinicians providing care to these communities. The primary aim of this study is to characterize attitudes and practices of palliative care physicians around providing care to SGM individuals. This exploratory, qualitative study used semi-structured interviewing. Interviews were transcribed and coded using reflexive thematic analysis. Twenty-four palliative care physicians practicing in the homecare, hospice, and hospital settings from geographically diverse sites across Canada were recruited from palliative care organizations using convenience and snowball sampling. Four main themes represent perspectives on improving palliative care for SGM individuals: (1) increasing experience with and knowledge about SGM communities increases clinicians' confidence and competency; (2) standardizing inclusive sexual orientation and gender identity (SOGI) data collection and documentation can improve patient care; (3) addressing individual, systemic, and societal biases may improve palliative care provided to SGM individuals; and (4) knowing SOGI improves care quality. Clinicians must familiarize themselves with the importance of SOGI to the care provided as well as the palliative care needs of SGM communities. Institutions should provide tailored training around the unique needs of SGM patients and implement policies and tools that standardize sexual and gender orientation data collection and documentation.

摘要

性少数群体和性别少数群体(SGM)面临接受欠佳护理(包括姑息治疗)的风险增加。尽管有研究表明了改善护理的策略,但对于为这些群体提供护理的姑息治疗临床医生的经历却知之甚少。本研究的主要目的是描述姑息治疗医生对为SGM个体提供护理的态度和做法。这项探索性的定性研究采用了半结构化访谈。访谈内容经转录后使用反思性主题分析进行编码。通过便利抽样和滚雪球抽样,从加拿大各地不同地理位置的家庭护理、临终关怀和医院环境中执业的24名姑息治疗医生中招募了研究对象,这些医生来自姑息治疗组织。关于改善为SGM个体提供的姑息治疗,有四个主要主题代表了相关观点:(1)增加对SGM群体的经验和了解可提高临床医生的信心和能力;(2)规范包容性的性取向和性别认同(SOGI)数据收集和记录可改善患者护理;(3)解决个人、系统和社会层面的偏见可能会改善为SGM个体提供的姑息治疗;(4)了解SOGI可提高护理质量。临床医生必须熟悉SOGI对所提供护理的重要性以及SGM群体的姑息治疗需求。机构应围绕SGM患者的独特需求提供量身定制的培训,并实施规范性取向和性别取向数据收集和记录的政策及工具。

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