常规使用患者报告的体验和结果测量方法评估儿童和青少年：范围综述。

Routine use of patient-reported experience and outcome measures for children and young people: a scoping review.

机构信息

UCL Great Ormond Street Institute of Child Health, London, UK.

The Health Foundation, 8 Salisbury Square, London, UK.

出版信息

Syst Rev. 2024 Nov 28;13(1):293. doi: 10.1186/s13643-024-02706-x.

DOI:10.1186/s13643-024-02706-x

PMID:39609878

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11603634/

Abstract

BACKGROUND

Patient-reported outcome measures (PROMs) measure people's views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring perceptions of their experience whilst receiving healthcare. PROMs/PREMs have the potential to enable children and young people (CYP) to be involved in decisions about their care and improve the quality of their care but it is not clear how often PROMs/PREMs are incorporated as part of standard care of CYP in the hospital setting. The aims of this scoping review were to understand the extent of the literature and map available evidence on the use, benefits, barriers and facilitators of PROMs/PREMs as part of standard care and treatment of CYP in hospitals.

METHODS

The Joanna Briggs Institute review process was used to map existing evidence on the use of PROMs/PREMs in routine care of CYP in different hospital settings worldwide. Key search terms were developed and Ovid (Emcare, Embase MEDLINE, APA PsychInfo), Scopus and Web of Science were searched. Data were analysed using frequency counts and basic content analysis for thematic mapping according to the research questions. We undertook an initial search in February 2021 and updated this in April 2023.

RESULTS

The search yielded 68,004 studies, 388 were eligible for full text review and 172 met the inclusion criteria. PROMs were more commonly used than PREMs in routine care of CYP in hospitals; these were mostly collected using electronic collection and concentrated in specific specialities, settings, contexts and countries. The findings mapped the use of PROMs/PREMs, including how data are applied in clinical practice and used for service development, but this was not consistently reported. There are specific challenges in the implementation of PROMs/PREMs in routine care of CYP that need to be considered.

CONCLUSION

PROMs/PREMs have the potential to improve care for CYP in hospital settings contributing to different aspects of care. A better understanding of their use, how results can be applied in clinical practice and contribute to service development will enable meaningful employment. The popularity of electronically collected and captured PROMS/PREMs warrants further investigation to enable their meaningful use in routine care of CYP.

SYSTEMATIC REVIEW REGISTRATION

Not pre-registered.

摘要

背景

患者报告的结局测量（PROMs）衡量人们对自身健康状况的看法，而患者报告的体验测量（PREMs）则是衡量人们在接受医疗保健时的体验感知的问卷。PROMs/PREMs 有可能使儿童和青少年（CYP）参与到他们的医疗决策中，并提高他们的医疗质量，但目前尚不清楚在医院环境中，PROMs/PREMs 作为 CYP 标准护理的一部分被纳入的频率如何。本综述的目的是了解文献的范围，并绘制现有证据，说明 PROMs/PREMs 在医院中作为 CYP 标准护理和治疗的一部分的使用、益处、障碍和促进因素。

方法

采用乔安娜·布里格斯研究所的审查流程，在全球范围内，针对不同医院环境中常规 CYP 护理中 PROMs/PREMs 的使用情况，对现有证据进行了映射。制定了关键搜索词，并在 Ovid（Emcare、Embase MEDLINE、APA PsychInfo）、Scopus 和 Web of Science 上进行了搜索。根据研究问题，使用频率计数和基本内容分析进行主题映射来分析数据。我们于 2021 年 2 月进行了初步搜索，并于 2023 年 4 月进行了更新。

结果

搜索结果产生了 68,004 项研究，388 项符合全文审查标准，172 项符合纳入标准。在医院常规 CYP 护理中，PROMs 的使用频率高于 PREMs；这些主要是通过电子收集进行收集，并集中在特定的专业、设置、环境和国家。研究结果映射了 PROMs/PREMs 的使用情况，包括如何在临床实践中应用数据以及用于服务开发，但这并未得到一致报告。在常规 CYP 护理中实施 PROMs/PREMs 存在具体挑战，需要加以考虑。