Department of Family Medicine and Emergency Medicine, University of Sherbrooke, Sherbrooke, Canada.
Department of Family Medicine, McGill University, Montreal, Canada.
J Patient Rep Outcomes. 2024 Nov 15;8(1):133. doi: 10.1186/s41687-024-00795-9.
Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are becoming essential parts of a learning health system, and using these measures is a promising approach for value-based healthcare. However, evidence regarding healthcare professional and patient organizations' knowledge, use and perception of PROMs and PREMs is lacking.
The objectives of the study were to: 1- Describe the current knowledge and use of PROMs and PREMs by healthcare professional and patient organizations, 2- Describe the determinants of PROMs and PREMs implementation according to healthcare professional and patient organizations.
We conducted an environmental scan using semi-structured interviews with representatives from healthcare professional and patient organizations. Interviews were recorded and live coded based on the Franklin framework. We used inductive and deductive thematic analysis to extract information about the main themes addressed during the interview (awareness of PROMs and PREMs, examples of implementation and use of PROMs and PREMs, tools used, vision for future implementation, barriers and facilitators to implementation and the best way to collect PROMs and PREMs data).
63% of healthcare professional organizations (n = 19) and 41% of patient organizations (n = 9) that were contacted agreed to have a representative interviewed. The representatives from both the healthcare professional and patient organizations acknowledged the importance of assessing patients' experience and outcomes. However, they considered the implementation of PROMs and PREMs tools to be scarce within their organizations, in clinical practice and in the education system. Patient organizations were worried that overuse of PROMs and PREMs could lead to depersonalization of practice. Barriers to implementing PROMs and PREMs included lack of awareness of tools, resistance to change and lack of motivation to complete or explain the questionnaire. Barriers also included factors such as lack of financial, technological and human resources and issues with integration of data and inconsistency of digital platforms.
This environmental scan revealed a lack of awareness of tools by healthcare professional and patient organizations' representatives and limited implementation. Adequate training, technological integration, and demonstration of PROMs and PREMs benefits to foster broader adoption in clinical and organizational settings is dearly needed. Addressing these challenges is essential for enhancing value-based care.
患者报告的结局测量（PROMs）和患者报告的体验测量（PREMs）正成为学习型健康系统的重要组成部分，使用这些测量工具是实现基于价值的医疗保健的一种有前途的方法。然而，关于医疗保健专业人员和患者组织对 PROMs 和 PREMs 的知识、使用和看法的证据尚缺乏。
本研究的目的是：1. 描述医疗保健专业人员和患者组织目前对 PROMs 和 PREMs 的了解和使用情况，2. 根据医疗保健专业人员和患者组织描述 PROMs 和 PREMs 实施的决定因素。
我们使用半结构化访谈，对医疗保健专业人员和患者组织的代表进行了环境扫描。访谈根据富兰克林框架进行记录和现场编码。我们使用归纳和演绎主题分析来提取访谈中涉及的主要主题的信息（对 PROMs 和 PREMs 的认识、PROMs 和 PREMs 的实施和使用实例、使用的工具、对未来实施的愿景、实施的障碍和促进因素以及收集 PROMs 和 PREMs 数据的最佳方式）。
联系的医疗保健专业组织中有 63%（n=19）和患者组织中有 41%（n=9）同意派代表接受采访。来自医疗保健专业人员和患者组织的代表都认识到评估患者体验和结果的重要性。然而，他们认为在其组织内部、临床实践中和教育系统中，实施 PROMs 和 PREMs 工具的情况很少。患者组织担心过度使用 PROMs 和 PREMs 可能导致实践的去人性化。实施 PROMs 和 PREMs 的障碍包括对工具缺乏认识、对变革的抵制以及缺乏完成或解释问卷的动力。障碍还包括缺乏财务、技术和人力资源以及数据集成和数字平台不一致等因素。
这项环境扫描显示，医疗保健专业人员和患者组织代表对工具的认识不足，实施有限。迫切需要提供足够的培训、技术整合以及展示 PROMs 和 PREMs 的效益，以促进在临床和组织环境中更广泛的采用。解决这些挑战对于加强基于价值的护理至关重要。
