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晚期癌症患者中国配偶的心理韧性:一项纵向探索

Resilience in Chinese Spouses of Patients with Advanced Cancer: A Longitudinal Exploration.

作者信息

Sun Haiyan, Chen Siyao, Nagai Ayano, Chen Xi, Qin Yang, Wei Zhiming

机构信息

School of Nursing, Jiangsu Medical College, Yancheng, Jiangsu, People's Republic of China.

Social Welfare Corporation Keiseikai Group, Osaka, Japan.

出版信息

J Multidiscip Healthc. 2024 Nov 26;17:5615-5627. doi: 10.2147/JMDH.S491596. eCollection 2024.

Abstract

BACKGROUND

In China, spouses of patients with advanced cancer have reported experiencing psychological distress. However, little attention has been paid to the positive psychological health trajectories of these caregivers, particularly regarding their resilience and the factors influencing its development over time.

PURPOSE

To examine the trajectories of resilience in Chinese spousal caregivers over a nine-month post-treatment period and to identify the basic characteristics associated with these trajectory patterns.

METHODS

This was a longitudinal, observational study conducted in mainland Chinese between January 2022 and May 2024. A total of 306 spouses of patients receiving cancer treatment were recruited from five local hospitals. Data was collected in four waves: within one month of initial treatment, and then at three-, six-, and nine-month intervals post-treatment. Socio-demographic questionnaires, the Connor-Davidson Resilience Scale, and the Beliefs in Chinese Familism Scale were used to collect data. Growth mixture modeling was employed to determine the various trajectories of resilience, followed by logistic regression analysis to examine the associated factors to predict types of trajectories.

RESULTS

Growth mixture modeling showed two distinct trajectories of resilience were identified: an increased group ( = 78, 25.5%) and a stable group ( = 228, 74.5%). The increased group began with a low baseline level (intercept = 46.713) and showed a slight increase over time (slope = 7.505, < 0.001), while the stable group had a moderate baseline level (intercept = 56.565) and remained stable over time (slope = 0.068, > 0.05). Those in the stable group were more likely to be female, and to have achieved a middle school level of education, a lower family income, and greater Chinese familism at baseline than those in the increased group.

CONCLUSION

Our findings underscore the importance of tracking the trajectories of resilience and predictors of trajectory patterns among spouses caring for patients with advanced cancer within a specific cultural context. Healthcare providers should provide tailored interventions to enhance resilience in spousal caregivers, considering the trajectory patterns of mental health change.

摘要

背景

在中国,晚期癌症患者的配偶报告称经历了心理困扰。然而,这些照料者积极的心理健康轨迹,尤其是他们的心理韧性以及随时间影响其发展的因素,却很少受到关注。

目的

研究中国配偶照料者在治疗后九个月内的心理韧性轨迹,并确定与这些轨迹模式相关的基本特征。

方法

这是一项于2022年1月至2024年5月在中国内地进行的纵向观察性研究。从五家当地医院招募了306名接受癌症治疗患者的配偶。分四波收集数据:初始治疗后一个月内,然后在治疗后三个月、六个月和九个月时收集。使用社会人口学问卷、康纳 - 戴维森心理韧性量表和中国家庭主义信念量表收集数据。采用增长混合模型确定心理韧性的不同轨迹,随后进行逻辑回归分析以检验预测轨迹类型的相关因素。

结果

增长混合模型显示确定了两种不同的心理韧性轨迹:上升组(n = 78,25.5%)和稳定组(n = 228,74.5%)。上升组起始基线水平较低(截距 = 46.713),且随时间略有上升(斜率 = 7.505,p < 0.001),而稳定组基线水平适中(截距 = 56.565),且随时间保持稳定(斜率 = 0.068,p > 0.05)。与上升组相比,稳定组的人在基线时更可能为女性,达到中学教育水平,家庭收入较低,且具有更强的中国家庭主义观念。

结论

我们的研究结果强调了在特定文化背景下追踪照料晚期癌症患者的配偶的心理韧性轨迹及轨迹模式预测因素的重要性。医疗保健提供者应考虑心理健康变化的轨迹模式,提供量身定制的干预措施以增强配偶照料者的心理韧性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7643/11607995/55b62bb86624/JMDH-17-5615-g0001.jpg

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