Borgström Malin, Hjelm Katarina, Skogman Barbro H, Nevéus Tryggve, Tunebjer Maria
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Center for Clinical Research Dalarna, Uppsala University, Falun, Sweden.
PLoS One. 2024 Dec 2;19(12):e0314623. doi: 10.1371/journal.pone.0314623. eCollection 2024.
Nocturnal enuresis is a very common and socially distressing condition among children. There are qualitative studies published in children with bowel and bladder problems with a focus on health-related quality of life and the burden of the condition, but there is a lack of knowledge of the experience of managing the treatment procedures at home. From a clinical viewpoint, it can be assumed that the procedures entail a lot of work and have an impact on everyday life apart from the disorders per se, but the actual voices of the children have not been heard.
To explore children's and their parents' experiences of labor-intensive procedures in the management of enuresis.
A qualitative interview study. Semi-structured interviews were held with fourteen children with enuresis six to nine years of age, together with their parents in Sweden between April 2020 and February 2021. Data were analyzed inductively with qualitative content analysis.
The major findings showed both favorable strategies and challenges in labor-intensive management. The results are described in four categories: 1) experiences of how to manage; 2) managing procedures was a favorable experience; 3) managing procedures made it complicated and 4) problematic to remember.
Managing the treatment of enuresis at home can be challenging. There were procedures that children did not like and new routines that were difficult to remember. However, the study can suggest strategies in how to manage and overcome these difficulties.
夜间遗尿症在儿童中非常常见，且给社会带来困扰。有针对患有肠道和膀胱问题儿童的定性研究，重点关注与健康相关的生活质量和病情负担，但对于在家中管理治疗程序的体验却缺乏了解。从临床角度来看，可以推测这些程序除了病症本身外还需要大量工作并对日常生活产生影响，但孩子们的真实声音尚未被听到。
探讨儿童及其父母在管理遗尿症时对劳动密集型程序的体验。
一项定性访谈研究。2020年4月至2021年2月期间，在瑞典对14名6至9岁患有遗尿症的儿童及其父母进行了半结构化访谈。采用定性内容分析法对数据进行归纳分析。
主要研究结果显示了劳动密集型管理中的有利策略和挑战。结果分为四类：1）如何管理的体验；2）管理程序是一种有利的体验；3）管理程序使其变得复杂；4）难以记住。
在家中管理遗尿症的治疗可能具有挑战性。有些程序孩子们不喜欢，新的日常安排也难以记住。然而，该研究可以提出如何管理和克服这些困难的策略。
