Cederblad M, Nevéus T, Åhman A, Österlund Efraimsson E, Sarkadi A
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
J Pediatr Urol. 2014 Feb;10(1):74-9. doi: 10.1016/j.jpurol.2013.06.006. Epub 2013 Jul 11.
To explore the everyday dilemmas of parents living with a child with nocturnal enuresis and to describe their support needs in relation to healthcare professionals.
The study was conducted in 2011 in Uppsala County, Sweden. Parents of 13 children with enuresis, 10 mothers and three fathers, participated in qualitative semi-structured in-depth interviews, which were analysed using systematic text condensation.
The analysis of the material resulted in six themes: enuresis is socially stigmatising and handicapping; all practices and home remedies are tested; it creates frustration in the family; protecting the child from gossip or teasing; support from healthcare providers would have helped; it's something we just have to live with. Two patterns of coping were identified: the Unworried wet-bed-fixers and the Anxious night-launderers.
Having a child with enuresis can be stressful for parents, although they tried hard not to blame their child. Because parents can feel reluctant to bring up enuresis themselves, they want child health nurses to routinely raise the issue of bedwetting at the yearly check-up. Parents' information needs included causes of and available treatment options for enuresis as well as access to aids and other support for affected families.
探讨有夜间遗尿症孩子的家长在日常生活中面临的困境，并描述他们对医疗保健专业人员的支持需求。
该研究于2011年在瑞典乌普萨拉县进行。13名遗尿症患儿的家长（10名母亲和3名父亲）参与了定性半结构化深度访谈，并采用系统文本浓缩法进行分析。
对资料的分析产生了六个主题：遗尿症具有社会污名化和致残性；尝试了所有方法和家庭疗法；遗尿症给家庭带来挫折感；保护孩子免受流言蜚语或嘲笑；医疗保健提供者的支持会有帮助；这是我们不得不忍受的事情。确定了两种应对模式：无忧无虑的尿床处理者和焦虑的夜间洗衣者。
孩子患有遗尿症会给家长带来压力，尽管他们努力不责怪自己的孩子。由于家长自己可能不愿提及遗尿症，他们希望儿童保健护士在年度体检时常规性地提出尿床问题。家长的信息需求包括遗尿症的病因、可用的治疗选择以及为受影响家庭提供辅助器具和其他支持。
