de Matos Marta Osório, Bobrowicz-Campos Elzbieta, Silva Rosa, Castanheira Francisca, Santos Diana
Iscte - Instituto Universitário de Lisboa (Iscte-IUL) Lisbon Portugal.
Centro de Investigação e Intervenção Social (Cis-Iscte) Lisbon Portugal.
Campbell Syst Rev. 2024 Dec 2;20(4):e70004. doi: 10.1002/cl2.70004. eCollection 2024 Dec.
This is the protocol for a Campbell systematic review. The aim of this scoping review is to map, describe and characterize the available evidence on the role that formal care might have in complementing informal caregivers role - romantic partners, parallel family members (e.g., [step]siblings, cousins or in-laws) or descendants (e.g., the care-receivers are [step]parents, [step]aunts/uncles, [step]grandparents or in-laws) - when providing care to adults with acquired diseases (physical or neurologic) in domestic settings and will set the ground for future research on this topic. The scoping review questions are the following: (i) What is the existing literature on the complementarity between formal and informal care? (ii) Which are the types of formal cares' services/interventions that have been described in the literature as complementary to informal care, provided to the informal caregiver and/or to the adult being cared for? (iii) Which outcomes have been assessed in the caregiver's physical, psychological, and social health domains, and how have they been measured?
这是一项坎贝尔系统评价的方案。本范围综述的目的是梳理、描述和刻画现有证据，这些证据涉及在家庭环境中为患有后天性疾病（身体或神经方面）的成年人提供护理时，正规护理在补充非正规护理者角色方面可能发挥的作用——非正规护理者角色包括浪漫伴侣、平行家庭成员（如继兄弟姐妹、堂兄弟姐妹或姻亲）或后代（如受照顾者是继父母、继姑/叔、继祖父母或姻亲），并将为该主题的未来研究奠定基础。范围综述的问题如下：（i）关于正规护理与非正规护理之间互补性的现有文献有哪些？（ii）文献中描述的哪些正规护理服务/干预措施被认为是对非正规护理的补充，是提供给非正规护理者和/或被护理的成年人的？（iii）在护理者的身体、心理和社会健康领域评估了哪些结果，以及这些结果是如何测量的？
