Perceptions and Needs for a Technology-Based Dyadic Intervention on Symptom Management Among Patients With Colorectal Cancer and Their Caregivers: A Qualitative Study.

BACKGROUND

Colorectal cancer (CRC) patients and their caregivers often experience multiple co-occurring symptoms (eg, fatigue, depression, anxiety, and sleep disturbance). There is a noticeable gap in research regarding symptom management for patient-caregiver dyads, particularly using technology-based tools.

OBJECTIVE

This study aimed to describe the needs and perceptions of patient-caregiver dyads regarding a technology-based tool to manage their multiple symptoms.

METHODS

This study utilized a qualitative descriptive design with purposive sampling. Semistructured interviews were conducted with CRC patients undergoing chemotherapy and their caregivers. Thematic analysis was performed to identify key themes.

RESULTS

The study included 11 patients and 8 caregivers (8 patient-caregiver dyads and 3 patients without dyads). Four main themes emerged: (1) high symptom burden experienced by CRC patients and their caregivers; (2) symptom self-management strategies, including information seeking and self-education, family and social support, and coping strategies; (3) input and suggestions for technology use, covering aspects such as content, format, and specific technology features; and (4) concerns about barriers to healthcare access, including technological literacy, geographical distance, and time constraints.

CONCLUSIONS

Our findings provide novel insights into experiences, needs, and suggestions of CRC patient-caregiver dyads for managing multiple symptoms. Participants emphasized the importance of developing a tailored, technology-based tool that includes personalized, evidence-based content; accessible and intuitive design features; and interactive social support capabilities.

IMPLICATIONS FOR PRACTICE

Leveraging these findings, we aim to develop a technology-based dyadic intervention tool that addresses the psychosocial needs of CRC patient-caregiver dyads. This approach can also enhance health equity by making care more accessible.