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Consent forms used by patient assistance programs raise privacy concerns.

作者信息

Dix-Cooper Linda, Sirrs Sandra

机构信息

Healthcare Project Manager with British Columbia's Expensive Drugs for Rare Diseases program in Vancouver and is trained extensively in patient PHI privacy. Works for the Provincial Health Services Authority in Vancouver.

Clinical Professor in the Division of Endocrinology at the University of British Columbia in Vancouver, is Medical Lead for the Expensive Drugs for Rare Diseases program, and is focused on health policy as it applies to rare diseases. Works for the Provincial Health Services Authority in Vancouver.

出版信息

Can Fam Physician. 2024 Nov-Dec;70(11-12):685-687. doi: 10.46747/cfp.701112685.

DOI:10.46747/cfp.701112685
PMID:39638398
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11634248/
Abstract
摘要

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本文引用的文献

1
Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information.信任与健康信息交流：个人健康信息共享意向的定性分析。
J Med Internet Res. 2023 Aug 30;25:e41635. doi: 10.2196/41635.
2
Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review.患者在数字健康背景下对知情同意的观点和偏好：最新文献综述。
J Med Internet Res. 2023 Feb 10;25:e42507. doi: 10.2196/42507.
3
Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent.用于健康研究的基因组数据共享：机构信任与可信度以及知情同意
CMAJ. 2022 Nov 15;194(44):E1511-E1512. doi: 10.1503/cmaj.221500.
4
The commercialization of patient data in Canada: ethics, privacy and policy.加拿大患者数据的商业化：伦理、隐私与政策
CMAJ. 2022 Jan 24;194(3):E95-E97. doi: 10.1503/cmaj.210455.