Dhareshwar Shashank Sudarshan, Nithin R, Anantharam Jairam, Kedlaya Prashant, Satish Renuka, Jha Vijoy Kumar, Akal Ramanjit Singh
Department of Nephrology, St. Johns Medical College Hospital, Bengaluru, Karnataka, India.
Department of Nephrology, Base Hospital, New Delhi, Delhi, India.
Indian J Nephrol. 2024 Nov-Dec;34(6):597-602. doi: 10.25259/ijn_424_23. Epub 2024 Jul 8.
Increased caregiver burden undermines caregivers' mental and physical health and is an under recognized but critical aspect for the success of continuous ambulatory peritoneal dialysis (CAPD). This study was undertaken to quantify and identify the factors determining CAPD caregiver burden.
A cross-sectional study was conducted among 51 caregivers of CAPD patients visiting the centers from July to August 2023. Caregiver burden score was determined using "Zarit Burden Interview" by interview method.
The mean age of caregivers was 42.8 ± 10.83 years with 52.9% females. The mean Zarit burden score of the caregivers was 29.18 ± 11.81. Younger caregivers experienced significantly higher burden (r = -0.34, = 0.013). Lesser educated caregivers were perceiving a higher burden. Lower socioeconomic strata people had significantly higher burden ( < 0.001) and especially so when there was a loss in income attributed to caregiving. Patients who were covered by state insurance experienced a notably lower caregiver burden (19.2 ± 6.1) when compared to those who were self-financed (32.4 ± 11.08) or had company insurance (37.2 ± 13.6). Gender, religion, marital status, and type of family had no bearing on the caregiver burden.
Age, loss of income, education, and socioeconomic status are important determinants of caregiver burden. State sponsored program lowers caregiver burden significantly. A CAPD program should address these factors to mitigate caregiver burden.
照顾者负担加重会损害其身心健康，这是持续非卧床腹膜透析（CAPD）成功实施过程中一个未得到充分认识但至关重要的方面。本研究旨在量化并确定决定CAPD照顾者负担的因素。
2023年7月至8月，对前往各中心就诊的51名CAPD患者的照顾者进行了一项横断面研究。采用访谈法，通过“扎里特负担访谈量表”确定照顾者负担得分。
照顾者的平均年龄为42.8±10.83岁，女性占52.9%。照顾者的平均扎里特负担得分为29.18±11.81。年轻照顾者的负担明显更高（r = -0.34，P = 0.013）。受教育程度较低的照顾者感受到的负担更高。社会经济地位较低阶层的人负担明显更高（P < 0.001），尤其是当因照顾导致收入减少时。与自费（32.4±11.08）或有公司保险（37.2±13.6）的患者相比，参加国家保险的患者的照顾者负担明显更低（19.2±6.1）。性别、宗教、婚姻状况和家庭类型与照顾者负担无关。
年龄、收入损失、教育程度和社会经济地位是照顾者负担的重要决定因素。国家资助项目可显著降低照顾者负担。CAPD项目应解决这些因素以减轻照顾者负担。
