McElroy Lisa M, Obayemi Joy E, Shaw Brian I, Park Christine, Caddell Keenan, Davis LaShara A, DePasquale Nicole, Mohottige Dinushika, Boulware L Ebony
Division of Abdominal Transplant, Department of Surgery, Duke University, Durham, NC, United States.
Northwestern University Transplant Outcomes Research Collaborative (NUTORC), Comprehensive Transplant Center (CTC), Northwestern University Feinberg School of Medicine, Chicago, IL, United States.
Front Transplant. 2024 Nov 25;3:1490876. doi: 10.3389/frtra.2024.1490876. eCollection 2024.
Health system websites are important resources to guide health care decisions and may be useful tools to improve racial equity in access to living donor kidney transplant (LDKT).
We performed a cross-sectional study of adult LDKT programs in the United States. We created an assessment tool for website quality across three domains: accessibility (access to LDKT specific information from the transplant center website), readability (ease of reading and clarity), and educational content (appropriateness and presentation of information, LDKT-specific content, program-specific characteristics, and adherence to equity-centered principles of web design).
Among the 185 transplant center websites reviewed, only 14.6% of LDKT sites could be accessed directly from the transplant center webpage. The median suitability assessment of materials (SAM)-a validated measure of website content for chronic kidney disease (CKD)-was 45 out of 86 (IQR 4) and the median Flesch-Kincaid grade level and ease score were 9.1 (IQR 0.8) on a scale of 0-18 and 51.2 (IQR 5) on a scale of 0-100, respectively.
These results indicate that LDKT websites are currently not available, accessible, and understandable for many potential transplant candidates and donors. Optimizing the content and design of transplant center websites may be a promising and effective strategy for improving equity in access to LDKT.
卫生系统网站是指导医疗保健决策的重要资源，可能是改善活体供肾移植（LDKT）获得机会种族公平性的有用工具。
我们对美国的成人LDKT项目进行了一项横断面研究。我们创建了一个网站质量评估工具，涵盖三个领域：可访问性（从移植中心网站获取LDKT特定信息）、可读性（易读性和清晰度）以及教育内容（信息的恰当性和呈现方式、LDKT特定内容、项目特定特征以及遵循以公平为中心的网页设计原则）。
在审查的185个移植中心网站中，只有14.6%的LDKT网站可直接从移植中心网页访问。材料适宜性评估（SAM）的中位数——一种用于评估慢性肾病（CKD）网站内容的有效指标——在86分制中为45分（四分位间距[IQR]为4），Flesch - Kincaid年级水平中位数和易读性分数在0 - 18分制中分别为9.1分（IQR为0.8），在0 - 100分制中分别为51.2分（IQR为5）。
这些结果表明，对于许多潜在的移植候选者和捐赠者来说，LDKT网站目前不可用、难以访问且难以理解。优化移植中心网站的内容和设计可能是提高LDKT获得机会公平性的一种有前景且有效的策略。
