Navigating the Life-Limiting Illness Journey: A Mixed-Method Systematic Review of Advance Care Planning Experiences Among Healthcare Providers, Patients and Family.

BACKGROUND

Advance care planning (ACP) enables individuals with life-limiting illnesses to make decisions regarding future healthcare. It involves patients, families and healthcare providers in discussions on treatment preferences and end-of-life care. Understanding their experiences is key to improving ACP practice.

AIMS

To systematically review and analyse the experiences of patients, families and healthcare providers with ACP for life-limiting illnesses.

DESIGN

This study employed a mixed-methods systematic review (MMSR) with a convergent integrated approach.

METHODS

Literature searches were conducted using CINAHL, Cochrane Library, ERIC, MEDLINE, Scopus and Web of Science, as well as hand searches and reference list checking, for articles published between 2010 and August 2024. Two independent reviewers extracted and analysed the data using the JBI guidelines for MMSR.

RESULTS

Of the 1405 citations, 26 studies involving 1599 participants (1076 patients, 398 healthcare providers and 125 family members) were included. The main findings highlight the importance of patient empowerment, family involvement and the integration of ACP into routine care. Eliminating barriers, such as lack of training, resource limitations and challenges with timing discussions, are essential for effective ACP implementation.

CONCLUSION

The MMSR emphasises the need for patient-centred ACP that actively involves families and addresses systemic barriers. Early initiation, tailored emotional support and equitable care across conditions are crucial for an effective ACP.

IMPLICATIONS FOR THE PROFESSION AND PATIENT CARE

The MMSR highlights the importance of family involvement and enhanced training for healthcare providers in ACP, emphasising the need for emotional support and systemic changes to improve patient care. These improvements should include better educational programs and policies to ensure early, effective and equitable ACP discussions among various patient groups.

IMPACT

The MMSR underscores the need for structured ACP practices that are currently limited by insufficient training and vague guidelines. Early initiation of ACP discussions and inclusion of patient and family preferences are essential for improving care for individuals with life-limiting conditions. These findings are vital for healthcare providers, policymakers and educators to implement more effective patient-centred ACP approaches. Family involvement remains a key aspect, with the review advocating for a support system that empowers families to play an active role in ACP.

REPORTING METHODS

Preferred Reporting Items for Systematic Review and Meta-Analyses (PRISMA).

PATIENT OR PUBLIC CONTRIBUTION

No Patient or Public Contribution.