Gerhart James, Oswald Laura Bouchard, McLouth Laurie, Gibb Lindsey, Perry Laura, England Ashley Eaton, Sannes Timothy, Schoenbine Delaney, Ramos Katherine, Greenberg Jared, O'Mahony Sean, Levine Stacie, Baron Aliza, Hoerger Michael
Department of Psychology, Central Michigan University, Mt. Pleasant, MI, USA.
Rush University Medical Center, Department of Psychiatry and Behavioral Sciences, Chicago, IL, USA.
Illn Crises Loss. 2025 Jan;33(1):109-129. doi: 10.1177/10541373231201952. Epub 2023 Sep 24.
Patients receiving palliative care experience stigma associated with their illness, personal identity, and healthcare utilization. These stigmas can occur at any stage of the disease process. Varying stigmas combine to cause palliative care patients to feel misunderstood, contribute to treatment barriers, and further negative stereotypes held by clinicians. Stigma surrounding palliative care patients stems from complex intersections of varied access to resources, familial and physical environment, socioeconomic status, mental health and disorders, and identity characteristics. This article examines the relationship between mental health stigma and palliative care through three pathways: stigma and barriers existing within healthcare, the tendency of this stigma to undermine social support, and the deferral of treatment-seeking in response to stigma. Recommendations to address and diminish stigmatization are presented, including advocacy, increased research and assessment, and contextual and intersectional awareness. Clinicians are also encouraged to turn to their colleagues for peer support and team-based care.
接受姑息治疗的患者会因其疾病、个人身份和医疗保健利用情况而遭受耻辱感。这些耻辱感可能出现在疾病过程的任何阶段。各种耻辱感交织在一起,导致姑息治疗患者感到被误解,造成治疗障碍,并进一步强化临床医生持有的负面刻板印象。围绕姑息治疗患者的耻辱感源于资源获取、家庭和身体环境、社会经济地位、心理健康和疾病以及身份特征等多种因素的复杂交织。本文通过三条途径探讨心理健康耻辱感与姑息治疗之间的关系:医疗保健中存在的耻辱感和障碍、这种耻辱感破坏社会支持的倾向,以及因耻辱感而推迟寻求治疗。文章还提出了应对和减少耻辱感的建议,包括宣传、加强研究和评估,以及情境和交叉意识。此外,还鼓励临床医生向同事寻求同伴支持和团队式护理。