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患者参与糖尿病相关足部溃疡治疗:在多学科门诊足部中心接受治疗时,患者需要什么以及更喜欢什么?一项现象学诠释学研究。

Patient involvement in diabetes-related foot ulcers: What do patients need and prefer when undergoing treatment at multidisciplinary outpatient foot centres? A phenomenological hermeneutic study.

作者信息

Hansen Carrinna Aviaja, Hjelmgaard Camilla Misha Holde, Kristensen Marlene Østermark, Berthelsen Connie

机构信息

Department of Orthopaedic Surgery, Zealand University Hospital, University of Copenhagen, Koege, Denmark.

Department of Regional Health Research, University of Southern Denmark, Odense C, Denmark.

出版信息

Int Wound J. 2024 Dec;21(12):e70128. doi: 10.1111/iwj.70128.

Abstract

We adopted a qualitative descriptive design to gain a broad understanding of the experiences, needs and preferences. Semi-structured interviews were conducted with 21 patients with diabetes-related foot ulcers using an interview guide. Patients were recruited from the four multidisciplinary foot centres in the Eastern Danish Region of Zealand. The methodology utilised a phenomenological hermeneutical perspective, allowing participants to share their experiences. The data analysis was inspired by Paul Ricoeur's philosophy of text interpretation. Three themes were identified: (1) Becoming dependent on patient involvement to cope and comprehend, (2) Experiences and needs regarding the involvement of relatives and equals and (3) Being vulnerable and limited by diabetes-related foot ulcers while striving for normality. This study emphasised the complexity of, and the highly burdensome, life that the participants experienced living with treatment-required diabetes-related foot ulcers while needing individualised and family-centred approaches, which are highly dependent on the healthcare professionals' communication skills. One of the most crucial aspects of patient care is providing individualised and person-centred information. The information necessitates the enhancement of healthcare professionals' communication skills. By emphasising the need for family-centred strategies, we can improve health and well-being by involving patients, relatives and patients' networks as active team players in the care process.

摘要

我们采用定性描述性设计,以全面了解患者的经历、需求和偏好。使用访谈指南对21名患有糖尿病相关足部溃疡的患者进行了半结构化访谈。患者从西兰岛丹麦东部地区的四个多学科足部中心招募。该方法采用了现象学诠释学的视角,让参与者分享他们的经历。数据分析的灵感来自保罗·利科的文本解释哲学。确定了三个主题:(1)变得依赖患者参与来应对和理解,(2)关于亲属和平等者参与的经历和需求,以及(3)在努力恢复正常的同时,因糖尿病相关足部溃疡而变得脆弱和受限。本研究强调了参与者在患有需要治疗的糖尿病相关足部溃疡时所经历的生活的复杂性和沉重负担,同时需要个性化和以家庭为中心的方法,而这高度依赖于医护人员的沟通技巧。患者护理最关键的方面之一是提供个性化和以患者为中心的信息。这些信息需要提高医护人员的沟通技巧。通过强调以家庭为中心的策略的必要性,我们可以让患者、亲属和患者网络作为护理过程中的积极团队成员参与进来,从而改善健康状况和幸福感。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8bed/11646657/ba4a8f3e77c0/IWJ-21-e70128-g001.jpg

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