Zisk Alyssa Hillary, Eddy Brandon, Donaldson Amy L, Cannalonga Sara, Strickland Olivia, Corbin Endever, Schall Jorja Harper T
AAC Research Team, AssistiveWare, Amsterdam, The Netherlands.
Department of Speech & Hearing Sciences, Portland State University, Portland, Oregon.
Semin Speech Lang. 2024 Nov;45(5):524-542. doi: 10.1055/s-0044-1793928. Epub 2024 Dec 16.
Autistic adults report communication access barriers related to the prioritization of speech over all other forms of communication. Our participatory research team, including autistic adults who use augmentative and alternative communication (AAC) both part- and full-time, designed and administered a 35-question online survey to examine school-based professionals' knowledge, training, and practices related to AAC and autism. The current study reports a portion of the larger data set specific to participants' definitions of speech terms related to autistic speech. A total of 567 participants completed the survey. Thematic analysis of participants' responses to speech definitions revealed multiple themes, including a focus on speech without implying or suggesting other forms of communication, speech production (mechanics), communication functions (intentionality), deficits, and definitions that were exclusionary in nature (e.g., identifying what the term did not define). Quantitative analysis of definitions of autistic speech revealed the need for increased exposure to these internal speech states for professionals working with autistic children. Increasing school-based professionals' knowledge, including community-sourced knowledge, related to autism and AAC, can improve access to AAC for speaking autistic students who may benefit from AAC.
成年自闭症患者报告称,在沟通方面存在障碍,原因是言语被置于高于所有其他沟通形式的优先级。我们的参与式研究团队,包括部分时间或全职使用辅助和替代沟通(AAC)的成年自闭症患者,设计并开展了一项包含35个问题的在线调查,以考察学校专业人员关于AAC和自闭症的知识、培训及实践情况。本研究报告了较大数据集的一部分,该部分数据具体涉及参与者对与自闭症言语相关的言语术语的定义。共有567名参与者完成了该调查。对参与者关于言语定义的回答进行主题分析后发现了多个主题,包括专注于言语而不暗示或提及其他沟通形式、言语产生(机制)、沟通功能(意图)、缺陷以及本质上具有排他性的定义(例如,确定该术语未定义的内容)。对自闭症言语定义的定量分析表明,与自闭症儿童打交道的专业人员需要更多地了解这些内部言语状态。增加学校专业人员关于自闭症和AAC的知识,包括来自社区的知识,可以改善那些可能从AAC中受益的自闭症言语学生使用AAC的机会。