Joint Doctoral Program in Special Education, University of California-Berkeley and San Francisco State University.
Department of Speech, Language and Hearing Sciences, San Francisco State University, CA.
Lang Speech Hear Serv Sch. 2024 Apr 11;55(2):607-627. doi: 10.1044/2024_LSHSS-23-00117. Epub 2024 Feb 7.
Parent engagement and involvement is essential for the successful implementation of augmentative and alternative communication (AAC) systems in the home. The purpose of the current study is to gain a deeper understanding of caregivers' experiences with AAC systems and their collaboration with school professionals during the implementation of AAC, which may have led to subsequent abandonment.
This review intentionally included qualitative studies that employed semistructured interviews, focus groups, and ethnographic investigations that documented the experiences and perceptions of families implementing AAC at home. Electronic database search, ancestral search, and forward search procedures resulted in a total of 27 peer-reviewed studies portraying the voices of 319 caregivers.
An inductive analysis was conducted to record recurring themes into codes. The codes were thematically synthesized into three main themes: (a) the family unit, (b) the service providers, and (c) the AAC system.
The results emphasized the need for participatory practices of family involvement in co-constructing a collaborative AAC service provision. Future research directions should implement this practice and explore the outcomes of this process to validate its efficacy.
家长的参与和投入对于在家庭中成功实施辅助沟通（AAC）系统至关重要。本研究的目的是更深入地了解照顾者在实施 AAC 过程中的体验，以及他们与学校专业人员的合作情况，这些合作情况可能导致了后续的放弃。
本综述故意纳入了使用半结构化访谈、焦点小组和民族志研究的定性研究，这些研究记录了在家中实施 AAC 的家庭的体验和看法。电子数据库搜索、祖先搜索和前向搜索程序共产生了 27 篇同行评议的研究，描绘了 319 位照顾者的声音。
进行了归纳分析，将反复出现的主题记录为代码。这些代码被主题性地综合成三个主要主题：（a）家庭单位，（b）服务提供者，和（c）AAC 系统。
结果强调了需要以参与式的方式让家庭参与合作构建协作性的 AAC 服务提供。未来的研究方向应该实施这一实践，并探索这一过程的结果，以验证其效果。
