Kendrick-Allwood Salathiel R, Murphy Melissa M, Shin Katie S, Minaz Anmol, Walker Laverne Keecia, Maitre Nathalie L
Department of Pediatrics, Division of Neonatology, Emory University School of Medicine, Atlanta, GA 30322, USA.
Children's Healthcare of Atlanta, Atlanta, GA 30329, USA.
J Clin Med. 2024 Nov 23;13(23):7081. doi: 10.3390/jcm13237081.
: To describe social and psychological needs, such as poverty, early trauma, or adverse childhood events, of caregivers with a child newly diagnosed with cerebral palsy (CP) or receiving a designation of high-risk for cerebral palsy (HRCP). : Caregiver self-report questionnaires screening for unmet social needs, adverse childhood experiences (ACEs), depression symptoms, and trauma were collected from 97 caregivers of children with CP/HRCP seen in a high-risk infant follow-up clinic (adjusted age range 1-24 months). We compared their responses to those of 97 caregivers of age-matched controls seen in the same clinic with similar risk factors over the equivalent time period. : Income insecurity and positive screening rate for depressive and trauma symptoms were high for both groups (CP/HRCP, matched control group); no differences were found between CP/HRCP and control groups. Rates of food and housing insecurity and caregiver ACEs were not different between groups. All families received referrals to appropriate community support at the visit. Caregivers of children with CP/HRCP in high-risk infant follow-up clinics may face difficult conversations and decision-making in the context of high psychological and social adversity. Comprehensive support should be considered as early as possible.
描述新诊断为脑瘫(CP)或被认定为脑瘫高危(HRCP)儿童的照料者的社会和心理需求,如贫困、早期创伤或童年不良事件。
从在高危婴儿随访诊所就诊的97名CP/HRCP儿童的照料者(校正年龄范围1至24个月)中收集照料者自我报告问卷,以筛查未满足的社会需求、童年不良经历(ACEs)、抑郁症状和创伤情况。我们将他们的回答与同期在同一诊所就诊的、具有相似风险因素的97名年龄匹配对照儿童的照料者的回答进行了比较。
两组(CP/HRCP组、匹配对照组)的收入不安全感以及抑郁和创伤症状的阳性筛查率都很高;CP/HRCP组和对照组之间未发现差异。两组在食物和住房不安全率以及照料者ACEs方面没有差异。所有家庭在就诊时都获得了转介到适当社区支持机构的机会。高危婴儿随访诊所中CP/HRCP儿童的照料者在高度心理和社会逆境的背景下可能面临艰难的对话和决策。应尽早考虑提供全面支持。