Zipfel Julian, Filip Zoltan, Kohlmann-Dell'Acqua Cristina, Noell Susan, Trakolis Leonidas
Department of Neurotechnology and Neurosurgery, University Hospital Tuebingen, 72076 Tübingen, Germany.
Centre for Clinical Studies, University Hospital Tuebingen, 72076 Tübingen, Germany.
J Clin Med. 2024 Nov 27;13(23):7205. doi: 10.3390/jcm13237205.
: Despite surgical interventions with advances in endoscopic procedures as well as shunt technologies, the quality of life in patients with hydrocephalus can be poor. Clinical experience suggests discrepancies between objective measures of treatment success and subjective patient satisfaction. With this study, we retrospectively investigated patients' knowledge of their treatment as well as their satisfaction with received interventions. : Retrospective analysis of self-reporting forms, routinely handed out in the hydrocephalus clinic of a tertiary neurosurgical center, was performed. Clinical data were gathered between 1 January 2020 and 31 March 2023. Correlation of self-reporting forms and available clinical data was performed. : A total of 261 forms from 215 patients were obtained. The mean age at visit was 57.5 ± 18.5 years (range 19-88). The most common pathology was normal pressure hydrocephalus (NPH, 31.6%); 31.2% had an occlusive etiology, 22.3% posthemorrhagic, 9.8% benign intracranial hypertension and 5.1% another pathology. Overall, 53% of patients ( = 114) indicated the correct therapy on the self-reporting forms (χ (56) = 100.986, < 0.001). Symptoms and subjective benefit did not differ in the different types of provided therapy. : Merely half of the patients with hydrocephalus are able to correctly indicate the treatment they had received. The type of shunt valve did not affect the rate of self-reported symptoms. The symptoms and subjective benefits did not differ in the different types of provided therapy. Poor patient knowledge could correlate with poor self-reported quality of life. Medical professionals should emphasize and advocate for better patient education.
尽管随着内镜手术和分流技术的进步进行了外科干预，但脑积水患者的生活质量可能较差。临床经验表明，治疗成功的客观指标与患者主观满意度之间存在差异。在本研究中，我们回顾性调查了患者对其治疗的了解程度以及他们对所接受干预措施的满意度。：对一家三级神经外科中心脑积水门诊常规发放的自我报告表格进行回顾性分析。收集了2020年1月1日至2023年3月31日期间的临床数据。对自我报告表格和可用临床数据进行了相关性分析。：共获得来自215名患者的261份表格。就诊时的平均年龄为57.5±18.5岁（范围19 - 88岁）。最常见的病理类型是正常压力脑积水（NPH，31.6%）；31.2%有梗阻性病因，22.3%为出血后，9.8%为良性颅内高压，5.1%为其他病理类型。总体而言，53%的患者（n = 114）在自我报告表格上指出了正确的治疗方法（χ(56)=100.986，P < 0.001）。不同类型的提供治疗中，症状和主观获益没有差异。：仅有一半的脑积水患者能够正确指出他们接受的治疗。分流阀的类型不影响自我报告症状的发生率。不同类型的提供治疗中，症状和主观获益没有差异。患者知识匮乏可能与自我报告的生活质量差相关。医学专业人员应强调并倡导更好的患者教育。
