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多发性硬化症患者的交际舞体验:对这种体验的认知

Ballroom Dancing for People With Multiple Sclerosis: Perceptions of the Experience.

作者信息

Piacentine Linda B, Yan Alice F, Ng Alexander V

机构信息

From the College of Nursing, Marquette University, Milwaukee, WI.

Health Equity Research, Department of Research, Patient Care Services, Stanford Healthcare; and Division of Primary Care and Population Health, Department of Medicine, Stanford University School of Medicine, Palo Alto, CA.

出版信息

Int J MS Care. 2024 Dec 16;26(Q4):355-362. doi: 10.7224/1537-2073.2023-061. eCollection 2024 Oct.

Abstract

BACKGROUND

Multiple sclerosis (MS) encompasses various symptoms, including fatigue, pain, spasticity, motor dysfunction, postural instability, sexual and bladder dysfunction, and cognitive impairment. Despite the documented benefits of exercise for alleviating MS symptoms, adherence to physical activity guidelines often is low, resulting in sedentary lifestyles among people with MS. This qualitative study explores the experiences of individuals with MS who participated in a ballroom dance intervention.

METHODS

Thirteen community-dwelling individuals with MS participated in five 1-hour focus group sessions as part of a larger ballroom dance study. The Framework Method, utilizing NVivo qualitative analysis software, was applied to verbatim transcripts.

RESULTS

Four themes emerged. (1) Physical and psychological benefits: Ballroom dance improved perceived symptoms, including strength, endurance, coordination, and balance, as well as reduced fatigue and alleviated depression. (2) Positive social support leading to enjoyment/fun: Ballroom dance fostered positive support and served as an enjoyable activity, including for couples. (3) Improved confidence: The dance intervention instilled confidence in physical abilities and emotional well-being. (4) Physical and social facilitation of activity: Ballroom dancing facilitated activity because partners were able to assist when fatigue or balance issues occurred, and the intervention provided social acceptability.

CONCLUSIONS

Recreational ballroom or social dance was well tolerated, and individuals with MS and researchers perceived it as beneficial as it led to positive physical and psychological changes. This partnered social dance intervention provided an emotionally and physically supportive environment, improved confidence, and facilitated activity. This study contributes to the understanding of the potential of recreational ballroom dancing to promote physical activity and well-being among people who are living with MS.

摘要

背景

多发性硬化症(MS)包含多种症状,包括疲劳、疼痛、痉挛、运动功能障碍、姿势不稳、性功能和膀胱功能障碍以及认知障碍。尽管有文献记载运动对缓解MS症状有益,但对体育活动指南的依从性通常较低,导致MS患者养成久坐不动的生活方式。这项定性研究探讨了参与交际舞干预的MS患者的经历。

方法

作为一项更大规模交际舞研究的一部分,13名居住在社区的MS患者参加了5次为时1小时的焦点小组会议。采用框架法并利用NVivo定性分析软件对逐字记录的文字稿进行分析。

结果

出现了四个主题。(1)身体和心理益处:交际舞改善了包括力量、耐力、协调性和平衡在内的可感知症状,还减轻了疲劳并缓解了抑郁。(2)带来享受/乐趣的积极社会支持:交际舞促进了积极的支持,并且是一项令人愉快的活动,包括对情侣而言。(3)信心增强:舞蹈干预增强了对身体能力和情绪健康的信心。(4)身体和社交方面对活动的促进:交际舞促进了活动,因为当出现疲劳或平衡问题时舞伴能够提供帮助,并且该干预提供了社会接受度。

结论

娱乐性交际舞或社交舞耐受性良好,MS患者和研究人员都认为它有益,因为它带来了积极的身体和心理变化。这种有舞伴的社交舞蹈干预提供了一个情感和身体上支持性的环境,增强了信心,并促进了活动。这项研究有助于理解娱乐性交际舞在促进MS患者身体活动和健康方面的潜力。

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本文引用的文献

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Dance for Multiple Sclerosis: A Systematic Review.
Int J MS Care. 2023 Jul-Aug;25(4):176-185. doi: 10.7224/1537-2073.2022-088. Epub 2023 Jul 11.
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Do dance style and intervention duration matter in improving balance among people with Parkinson's disease? A systematic review with meta-analysis.
Parkinsonism Relat Disord. 2023 Jan;106:105231. doi: 10.1016/j.parkreldis.2022.105231. Epub 2022 Nov 29.
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Exercise and lifestyle physical activity recommendations for people with multiple sclerosis throughout the disease course.
Mult Scler. 2020 Oct;26(12):1459-1469. doi: 10.1177/1352458520915629. Epub 2020 Apr 23.
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Ballroom dance for persons with multiple sclerosis: a pilot feasibility study.
Disabil Rehabil. 2020 Apr;42(8):1115-1121. doi: 10.1080/09638288.2018.1516817. Epub 2019 Jan 13.
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The Effects of M2M and Adapted Yoga on Physical and Psychosocial Outcomes in People With Multiple Sclerosis.
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A concerns report survey of physical activity support needs of people with moderate-to-severe MS disability and family caregivers.
Disabil Rehabil. 2019 Dec;41(24):2888-2899. doi: 10.1080/09638288.2018.1479781. Epub 2018 Jun 29.

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