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目前不参加锻炼的中度残疾多发性硬化症患者参与锻炼的障碍和解决方案:使用名义群体技术的共识发展研究。

Barriers and solutions to participation in exercise for moderately disabled people with multiple sclerosis not currently exercising: a consensus development study using nominal group technique.

机构信息

School of Health and Life Sciences, Glasgow Caledonian University, Glasgow, UK.

Nursing and Healthcare School, University of Glasgow, Glasgow, UK.

出版信息

Disabil Rehabil. 2019 Nov;41(23):2775-2783. doi: 10.1080/09638288.2018.1479456. Epub 2018 Jun 29.

DOI:10.1080/09638288.2018.1479456
PMID:29958016
Abstract

Multiple sclerosis (MS) is a chronic, progressive neurological condition. The aim of this study was to explore consensus on the barriers and solutions to exercise for people with MS living in Scotland. Thirty-five people with MS, not regularly exercising, were recruited and took part in five Nominal Group Technique groups throughout Scotland. Background information was collected on participants prior to each group. Participants individually and silently listed their barriers and solutions to participating in exercise. Group discussion then clarified, amended and merged ideas. Participants then ranked ideas by choosing five barriers and solutions to exercise participation. Data were analyzed using descriptive statistics and by carrying out a thematic grouping. Consensus was that fatigue was a barrier to exercise participation . Other identified barriers were a lack of support and advice, the impairments arising from the condition and time. No single item achieved consensus for solutions but exercising with others, receiving support, having a positive attitude, finding time and minimizing environmental barriers were all suggested as solutions to assist in exercise participation. People with MS should be provided with information on how to manage their fatigue alongside any exercise prescription. Information and support should be given on how to personalize exercise to suit individual needs and abilities to overcome some of the barriers suggested within this study.Implications for rehabilitationMore exercise opportunities are required.Exercise should be personalized to address the individual needs of the person with MS.Any identified barriers to exercise should be addressed.

摘要

多发性硬化症(MS)是一种慢性、进行性的神经系统疾病。本研究旨在探讨苏格兰居住的多发性硬化症患者在进行锻炼时面临的障碍和解决方法的共识。招募了 35 名不经常锻炼的多发性硬化症患者,并在苏格兰各地的五个名义群体技术小组中进行了讨论。在每次小组讨论之前,都会收集参与者的背景信息。参与者单独并默默地列出了他们参与运动的障碍和解决方法。然后,通过小组讨论澄清、修改和合并想法。参与者随后根据五项运动参与障碍和解决方法进行了排名。使用描述性统计数据和进行主题分组对数据进行了分析。一致认为疲劳是运动参与的障碍。其他确定的障碍包括缺乏支持和建议、病情引起的身体损伤和时间。没有一个单一的项目能够达成解决方案的共识,但与他人一起锻炼、获得支持、保持积极的态度、寻找时间和尽量减少环境障碍都被认为是有助于参与锻炼的解决方案。应向多发性硬化症患者提供有关如何管理疲劳以及如何进行运动处方的信息。应提供有关如何根据个人需求和能力个性化运动以克服本研究中提出的一些障碍的信息和支持。康复建议需要更多的运动机会。运动应个性化,以满足多发性硬化症患者的个体需求。应解决任何已确定的运动障碍。

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