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两名患者的病例报告:他们被同情性地准许出院回家,但未实现期望的在家中离世。

Case Presentation of Two Patients Compassionately Discharged, from Hospital to Home, Who Did Not Achieve Their Desired Home Death.

作者信息

Tan Anne, Yeo Zhi Zheng

机构信息

HCA Hospice Limited, Singapore, Singapore.

出版信息

J Hosp Palliat Care. 2024 Dec 1;27(4):172-176. doi: 10.14475/jhpc.2024.27.4.172.

Abstract

The objective of this case presentation is to identify factors that hinder home deaths after patients have been compassionately discharged from the hospital. It aims to shed light on modifiable factors that could facilitate a home death. Compassionate discharges differ from routine discharges as they are done to support the wishes of terminally ill patients to pass on at home. The two cases selected for detailed analysis were unique in our cohort; they were the only patients admitted to an inpatient hospice after being compassionately discharged to their homes. This study excluded patients who were readmitted to an acute hospital setting for further treatment trials, as their care objectives had changed. A retrospective analysis of medical notes identified several factors associated with the patient's inability to achieve a desired home death. These included a significant increase in nursing needs compared to the pre-admission status, the substantial psychological burden on families caring for a dying relative at home, and the absence of adaptable and sustainable care plans. Therefore, a successful compassionate discharge requires the provision of caregiver training and psychological support to families both before and after discharge. Moreover, healthcare providers must collaborate with families to develop flexible care plans that are sufficiently robust to manage the unpredictable prognoses of patients.

摘要

本病例报告的目的是确定在患者被同情性出院后阻碍其在家中死亡的因素。它旨在揭示可促进在家中死亡的可改变因素。同情性出院与常规出院不同,因为进行同情性出院是为了支持绝症患者在家中离世的愿望。在我们的队列中,选择进行详细分析的这两个病例很独特;他们是仅有的在被同情性出院回家后又住进住院临终关怀机构的患者。本研究排除了因进一步治疗试验而再次入住急症医院的患者,因为他们的护理目标已经改变。对病历的回顾性分析确定了与患者无法实现期望的在家中死亡相关的几个因素。这些因素包括与入院前状况相比护理需求显著增加、在家照顾临终亲属的家庭承受的巨大心理负担以及缺乏适应性和可持续的护理计划。因此,成功的同情性出院需要在出院前后为家庭提供护理者培训和心理支持。此外,医疗服务提供者必须与家庭合作制定灵活的护理计划,这些计划要足够完善,以应对患者不可预测的预后情况。

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