Kim Hyeon Ju, Huh Jung-Sik
Department of Family Medicine, Jeju National University Hospital, College of Medicine Jeju National University, Jeju, Korea.
Department of Urology, Jeju National University Hospital, College of Medicine Jeju National University, Jeju, Korea.
J Hosp Palliat Care. 2024 Dec 1;27(4):162-166. doi: 10.14475/jhpc.2024.27.4.162.
This study aims to clarify and standardize the terms and concepts associated with end-of-life care, specifically within the contexts of hospice and palliative care.
We reviewed references pertaining to hospice and palliative care, including definitions of end-of-life care and comfort care. Two meetings were held with members of the medical terminology committee of the Korean Society for Hospice and Palliative Care, along with experts in the field, to establish a consensus on the terms used. In the first round, six experts participated, and in the second round, eight experts engaged in online meetings to brainstorm, exchange opinions, and review and discuss reference materials concerning terms related to hospice and palliative care.
Legal definitions do not always align with those used in clinical medical settings. Although it is challenging to define the period precisely, end-of-life care encompasses all diseases, including age-related infirmities, typically spanning 6 months to 1 year. Hospice care, in contrast, includes certain non-cancerous terminal diseases as well as terminal cancer, covering a period of 3 to 6 months. Comfort care generally refers to the care provided approximately 7 days before death.
A conceptual understanding of terms related to end-of-life care must be reached through cultural and social consensus. Furthermore, end-of-life care should not be limited to cancer but extended to all diseases. In the future, the scope of end-of-life care should expand to encompass care for bereaved families, evolving into a more comprehensive concept of comfort care.
本研究旨在阐明并规范与临终关怀相关的术语和概念,特别是在临终关怀和姑息治疗的背景下。
我们查阅了与临终关怀和姑息治疗相关的参考文献,包括临终关怀的定义和舒适护理。与韩国临终关怀和姑息治疗学会医学术语委员会成员以及该领域的专家举行了两次会议,就所使用的术语达成共识。第一轮有六位专家参与,第二轮有八位专家参加在线会议,进行头脑风暴、交流意见,并审查和讨论与临终关怀和姑息治疗相关术语的参考资料。
法律定义并不总是与临床医疗环境中使用的定义一致。虽然精确界定这一时期具有挑战性,但临终关怀涵盖所有疾病,包括与年龄相关的虚弱病症,通常持续6个月至1年。相比之下,临终关怀包括某些非癌性晚期疾病以及晚期癌症,涵盖时间为3至6个月。舒适护理通常指在死亡前约7天提供的护理。
必须通过文化和社会共识达成对与临终关怀相关术语的概念性理解。此外,临终关怀不应局限于癌症,而应扩展到所有疾病。未来,临终关怀的范围应扩大到包括对丧亲家庭的护理,演变成一个更全面的舒适护理概念。