Liang Dongfeng, Guo Xiaojie, Zhang Jie, Hu Zhengyuan, Jiang Ronghuan
Department of Rheumatology and Immunology, the First Medical Center, Chinese PLA General Hospital, Beijing, 100853, China.
Department of Psychology, the First Medical Center, Chinese PLA General Hospital, Beijing, 100853, China.
BMC Public Health. 2024 Dec 18;24(1):3424. doi: 10.1186/s12889-024-21076-6.
This study aimed to explore the knowledge, attitude and practice (KAP) of fibromyalgia patients toward fibromyalgia.
This web-based cross-sectional study was conducted in China between February and March 2023 among fibromyalgia patients using a self-administered questionnaire.
A total of 401 valid questionnaires were enrolled, including 326 (81.30%) females and with a mean age of 42.42 ± 11.78 years. The mean scores for KAP were 7.14 ± 2.72 (possible range: 0-10), 27.31 ± 4.24 (possible range: 8-40) and 28.08 ± 5.55 (possible range: 10-50), respectively. Multivariate logistic regression analysis showed knowledge (OR = 1.09, 95%CI: 1.04-1.15, P = 0.001) and patient global impression (PGI) on average pain severity in the last week (OR = 0.89, 95%CI: 0.81-0.97, P = 0.011) were independently associated with positive attitude. Attitude (OR = 1.08, 95%CI: 1.02-1.14, P = 0.006), initial consultation in orthopedics (OR = 2.15, 95%CI: 1.24-3.73, P = 0.006) and age (OR = 0.98, 95%CI: 0.96-1.00, P = 0.037) were independently associated with proactive practice. The structural equation model demonstrated that knowledge had a positive effect on attitude (β = 0.21, P = 0.006), and Widespread Pain Index (WPI) exhibited an impact on both knowledge (β = -0.04, P < 0.001) and attitude (β = -0.52, P = 0.001).
Fibromyalgia patients showed suboptimal knowledge, moderate attitude and inactive practice toward fibromyalgia. To enhance fibromyalgia patient outcomes, recommendations include targeted education, addressing rural-urban disparities in knowledge, emphasizing early diagnosis, and adopting patient-centered approaches to promote positive attitude and better disease management.
本研究旨在探讨纤维肌痛患者对纤维肌痛的知识、态度和行为。
2023年2月至3月在中国开展了一项基于网络的横断面研究,对纤维肌痛患者采用自填式问卷进行调查。
共纳入401份有效问卷,其中女性326例(81.30%),平均年龄42.42±11.78岁。知识、态度和行为的平均得分分别为7.14±2.72(可能范围:0 - 10)、27.31±4.24(可能范围:8 - 40)和28.08±5.55(可能范围:10 - 50)。多因素logistic回归分析显示,知识(OR = 1.09,95%CI:1.04 - 1.15,P = 0.001)和患者对上周平均疼痛严重程度的整体印象(PGI)(OR = 0.89,95%CI:0.81 - 0.97,P = 0.011)与积极态度独立相关。态度(OR = 1.08,95%CI:1.02 - 1.14,P = 0.006)、骨科初诊(OR = 2.15,95%CI:1.24 - 3.73,P = 0.006)和年龄(OR = 0.98,95%CI:0.96 - 1.00,P = 0.037)与积极行为独立相关。结构方程模型表明,知识对态度有正向影响(β = 0.21,P = 0.006),广泛性疼痛指数(WPI)对知识(β = -0.04,P < 0.001)和态度(β = -0.52,P = 0.001)均有影响。
纤维肌痛患者对纤维肌痛的知识掌握欠佳,态度中等,行为不积极。为改善纤维肌痛患者的治疗效果,建议包括针对性教育、缩小城乡知识差距、强调早期诊断以及采用以患者为中心的方法来促进积极态度和更好的疾病管理。