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加纳城市中风幸存者对残疾生活的认知——一项定性研究。

Stroke survivors' perceptions of living with disability in urban Ghana- a qualitative study.

作者信息

Persson Petter, Hughton Anna, van Wees Sibylle Herzig

机构信息

Department of Women's and Children's Health, Uppsala University, Dag Hammarskjölds väg 14B, Uppsala, Sweden.

Department of Physiotherapy, School of Biomedical and Allied Health Sciences College of Health Sciences, , University of Ghana Part-Time Lecture And Accra Physiotherapy & Sports Injury Clinic, Clinic Director/Physiotherapist, Accra, Ghana.

出版信息

BMC Public Health. 2024 Dec 18;24(1):3504. doi: 10.1186/s12889-024-21030-6.

DOI:10.1186/s12889-024-21030-6
PMID:39696221
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11657779/
Abstract

BACKGROUND

Stroke prevalence is one of the most pressing issues in many sub-Saharan African countries. Stroke survivors often face disabilities, mental health problems, and experience stigma. Research on post-stroke experiences and interventions is limited, particularly in low and middle-income countries, including Ghana. This study aims to contribute to this gap by investigating experiences of everyday life following a stroke in urban Ghana.

METHOD

A qualitative in-depth study involving 14 interviews with stroke survivors who attended physiotherapy at Accra Physiotherapy and Sports Injury Clinic. Qualitative analysis was conducted to analyse the data.

RESULTS

Data analysis generated four themes; [1] Mobility limitations; [2] Psychosocial burden [3] Employment Limitations [4] Financial burden.

CONCLUSION

Stroke survivors with disabilities perceive themselves as non-functional members of society, which limits their options for a normal life and undermines their well-being. A more in-depth understanding of these issues can contribute to strategies, interventions, and policies that address these problems.

摘要

背景

在许多撒哈拉以南非洲国家,中风患病率是最紧迫的问题之一。中风幸存者常常面临残疾、心理健康问题以及遭受污名化。关于中风后经历和干预措施的研究有限,尤其是在包括加纳在内的低收入和中等收入国家。本研究旨在通过调查加纳城市中风患者的日常生活经历来填补这一空白。

方法

一项定性深入研究,对在阿克拉物理治疗与运动损伤诊所接受物理治疗的14名中风幸存者进行访谈。对数据进行定性分析。

结果

数据分析产生了四个主题:[1]行动能力受限;[2]心理社会负担;[3]就业限制;[4]经济负担。

结论

残疾的中风幸存者将自己视为社会中无功能的成员,这限制了他们正常生活的选择并损害了他们的幸福感。对这些问题更深入的理解有助于制定解决这些问题的策略、干预措施和政策。

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本文引用的文献

1
Prevalence and Course of Depression During the First Year After Mild to Moderate Stroke.轻度至中度中风后第一年抑郁的患病率和病程。
J Am Heart Assoc. 2021 Jul 6;10(13):e020494. doi: 10.1161/JAHA.120.020494. Epub 2021 Jun 29.
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Prevalence and correlates of stroke among older adults in Ghana: Evidence from the Study on Global AGEing and adult health (SAGE).加纳老年人中风的患病率及相关因素:来自全球老龄化和成人健康研究(SAGE)的证据。
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BMC Health Serv Res. 2018 May 29;18(1):384. doi: 10.1186/s12913-018-3192-9.
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Attitudes of health service providers: The perspective of people with disabilities in the Kumasi Metropolis of Ghana.医疗服务提供者的态度:加纳库马西大都会地区残疾人的视角
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Post-stroke depression in Ghana: Characteristics and correlates.加纳的中风后抑郁症:特征及相关因素
J Neurol Sci. 2017 Aug 15;379:261-265. doi: 10.1016/j.jns.2017.06.032. Epub 2017 Jun 20.
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Stroke-related stigma among West Africans: Patterns and predictors.西非人群中与中风相关的污名化:模式与预测因素
J Neurol Sci. 2017 Apr 15;375:270-274. doi: 10.1016/j.jns.2017.02.018. Epub 2017 Feb 9.
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Return to Work after a Stroke in Working Age Persons; A Six-Year Follow Up.工作年龄人群中风后的重返工作;六年随访
PLoS One. 2017 Jan 6;12(1):e0169759. doi: 10.1371/journal.pone.0169759. eCollection 2017.
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A Review of the National Health Insurance Scheme in Ghana: What Are the Sustainability Threats and Prospects?加纳国家健康保险计划综述:可持续性面临哪些威胁与前景?
PLoS One. 2016 Nov 10;11(11):e0165151. doi: 10.1371/journal.pone.0165151. eCollection 2016.
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Global, regional, and national incidence, prevalence, and years lived with disability for 310 diseases and injuries, 1990-2015: a systematic analysis for the Global Burden of Disease Study 2015.1990 - 2015年全球、区域和国家310种疾病和损伤的发病率、患病率及伤残调整生命年:全球疾病负担研究2015的系统分析
Lancet. 2016 Oct 8;388(10053):1545-1602. doi: 10.1016/S0140-6736(16)31678-6.
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Post-stroke disability and its predictors among Nigerian stroke survivors.尼日利亚中风幸存者的中风后残疾情况及其预测因素。
Disabil Health J. 2016 Oct;9(4):616-23. doi: 10.1016/j.dhjo.2016.05.011. Epub 2016 Jun 7.