• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

全国虚拟肿瘤委员会为罕见癌症患儿的治疗提供指导。

National virtual tumor boards to inform the management of children with rare cancers.

作者信息

Navai Shoba A, Mahajan Priya, Venkatramani Rajkumar

机构信息

Baylor College of Medicine, Department of Pediatrics, Division of Hematology Oncology, Houston, Texas.

Seattle Children's Hospital, University of Washington, Department of Pediatrics, Division of Hematology/Oncology, Seattle, Washington, USA.

出版信息

Curr Opin Pediatr. 2025 Feb 1;37(1):56-58. doi: 10.1097/MOP.0000000000001421. Epub 2024 Nov 28.

DOI:10.1097/MOP.0000000000001421
PMID:39699101
Abstract

PURPOSE OF REVIEW

Due to the infrequent nature of rare pediatric cancers, rigorously studied treatment algorithms are usually nonexistent, and experience with a given tumor may be limited at a single institution. Development of treatment plans for these populations often requires extensive literature review and outreach to experts at other institutions. National or international virtual tumor boards provide a streamlined, collaborative approach to discussing diagnosis and management of these patients through dissemination of collective experience and knowledge. This review highlights current virtual tumor boards for rare pediatric cancers and their benefit as a resource for patient care.

RECENT FINDINGS

Over the last several years, national virtual tumor boards sponsored by government and academic institutions and cancer foundations have expanded access of pediatric oncologists to rare tumor expertise and guidance. Recommendations from these tumor boards often have an impact on medical decision making, and some serve as a resource for enduring educational reference materials.

SUMMARY

National virtual tumor boards are a valuable resource to clinicians caring for patients with rare pediatric tumors. These conferences provide real-time management advice from peers and subject matter experts and provide essential educational content not easily accessible in other formats.

摘要

综述目的

由于儿童罕见癌症发病率低,通常不存在经过严格研究的治疗方案,而且单一机构对特定肿瘤的治疗经验可能有限。为这些患者制定治疗方案往往需要广泛查阅文献并与其他机构的专家交流。国家或国际虚拟肿瘤委员会通过传播集体经验和知识,提供了一种简化的协作方法来讨论这些患者的诊断和管理。本综述重点介绍了当前针对儿童罕见癌症的虚拟肿瘤委员会及其作为患者护理资源的益处。

最新发现

在过去几年中,由政府、学术机构和癌症基金会赞助的国家虚拟肿瘤委员会扩大了儿科肿瘤学家获取罕见肿瘤专业知识和指导的途径。这些肿瘤委员会的建议往往会对医疗决策产生影响,有些还作为持久教育参考资料的资源。

总结

国家虚拟肿瘤委员会是照顾儿童罕见肿瘤患者的临床医生的宝贵资源。这些会议提供同行和主题专家的实时管理建议,并提供其他形式不易获得的重要教育内容。

相似文献

1
National virtual tumor boards to inform the management of children with rare cancers.全国虚拟肿瘤委员会为罕见癌症患儿的治疗提供指导。
Curr Opin Pediatr. 2025 Feb 1;37(1):56-58. doi: 10.1097/MOP.0000000000001421. Epub 2024 Nov 28.
2
Rare Tumors in Children: Progress Through Collaboration.儿童罕见肿瘤:通过合作取得进展。
J Clin Oncol. 2015 Sep 20;33(27):3047-54. doi: 10.1200/JCO.2014.59.3632. Epub 2015 Aug 24.
3
Challenges and solutions to the study of rare childhood tumors.罕见儿童肿瘤研究的挑战与对策。
Curr Opin Pediatr. 2020 Feb;32(1):7-12. doi: 10.1097/MOP.0000000000000857.
4
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
5
Survey on paediatric tumour boards in Europe: current situation and results from the ExPo-r-Net project.欧洲儿科肿瘤委员会调查:现状和 ExPo-r-Net 项目的结果。
Clin Transl Oncol. 2018 Aug;20(8):1046-1052. doi: 10.1007/s12094-017-1820-1. Epub 2018 Jan 8.
6
American Society of Clinical Oncology policy statement: oversight of clinical research.美国临床肿瘤学会政策声明:临床研究监督
J Clin Oncol. 2003 Jun 15;21(12):2377-86. doi: 10.1200/JCO.2003.04.026. Epub 2003 Apr 29.
7
The value of virtual molecular tumor boards for informed clinical decision-making.虚拟肿瘤分子病理会诊对知情临床决策的价值。
Oncologist. 2024 Jul 5;29(7):554-559. doi: 10.1093/oncolo/oyae077.
8
Networking for children and adolescents with very rare tumors: foundation of the GPOH Pediatric Rare Tumor Group.为患有极罕见肿瘤的儿童和青少年建立网络:德国儿科肿瘤学和血液学学会(GPOH)儿科罕见肿瘤小组的基础
Klin Padiatr. 2009 May-Jun;221(3):181-5. doi: 10.1055/s-0029-1220705. Epub 2009 May 12.
9
Software-Tool Support for Collaborative, Virtual, Multi-Site Molecular Tumor Boards.用于协作式、虚拟、多站点分子肿瘤委员会的软件工具支持
SN Comput Sci. 2023;4(4):358. doi: 10.1007/s42979-023-01771-8. Epub 2023 Apr 27.
10
development of a therapeutic approach to rare cancers in children: the Children's Oncology Group experience.儿童罕见癌症治疗方法的发展:儿童肿瘤学组的经验
J Pediatr Hematol Oncol. 2012 May;34 Suppl 2:S37-8. doi: 10.1097/MPH.0b013e31824e378e.

引用本文的文献

1
Multidisciplinary tumor boards in pediatric surgical oncology: a systematic review of approaches in low- and middle-income countries.儿童外科肿瘤学中的多学科肿瘤委员会:对低收入和中等收入国家方法的系统评价
Pediatr Surg Int. 2025 May 30;41(1):152. doi: 10.1007/s00383-025-06050-6.