A qualitative study of bereaved parents and healthcare professionals on perinatal loss.

INTRODUCTION

Perinatal loss, encompassing stillbirth and neonatal death, can have profound physical and psychological consequences for parents. Effective communication by healthcare professionals during this sensitive period is critical. This study aimed to explore how bereaved parents and professionals experienced verbal and non-verbal communication during perinatal loss.

METHODS

A qualitative, in-depth interview study following grounded theory principles was conducted in Flanders, Belgium, between January and June 2021. Participants were purposively selected via a hospital ward. Face-to-face (n=8) and online (n=13) interviews were carried out by two midwife researchers who were aware of potential biases related to personal/professional interests. A group of bereaved parents and professionals provided feedback during the project. Qualitative analysis was conducted using NVIVO, employing open and axial coding to identify themes.

RESULTS

Eleven bereaved parents and ten professionals participated. Six themes emerged: 1) navigating time and adjusting pace; 2) recognition of parenthood in woman and partner; 3) clear, honest information for shared decision-making; 4) authentic contact while leaving room for alone time; 5) gentle and sensitive verbal communication; and 6) professionals' self-care. Parents valued clear, honest communication, acknowledgment of their parenthood, and the ability to make informed decisions. Healthcare professionals emphasized the challenge of providing adequate time and presence amidst busy schedules, but recognized the importance of empathy and sensitivity.

CONCLUSIONS

Compassionate, patient-centered care with effective verbal and non-verbal communication is vital in supporting bereaved parents during perinatal loss, and it continues to be a challenge. Findings can guide clinical practice to inform professional training initiatives and inform intervention development.