失去孩子的父母参与产科围产期死亡评审过程：“甚至没有人想到要问我们任何事情”。

Bereaved parents involvement in maternity hospital perinatal death review processes: 'Nobody even thought to ask us anything'.

机构信息

Department of Obstetrics and Gynaecology, Pregnancy Loss Research Group, University College Cork, Cork, Ireland.

Department of Obstetrics and Gynaecology, INFANT Research Centre, University College Cork, Cork, Ireland.

出版信息

Health Expect. 2023 Feb;26(1):183-198. doi: 10.1111/hex.13645. Epub 2022 Nov 6.

DOI:10.1111/hex.13645

PMID:36335583

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9854318/

Abstract

INTRODUCTION

The death of a baby is devastating for parents, families and staff involved. Involving bereaved parents in their baby's care and in the maternity hospital perinatal death review can help parents manage their bereavement and plan for the future. In Ireland, bereaved parents generally have not been involved in this review process. The aim of our study was to assess parents' perception of how they may be appropriately involved in the maternity hospital perinatal death review in ways that benefit them and the review process itself.

METHODS

Bereaved parents (n = 20) in Ireland were invited to take part in semistructured interviews. Thematic analysis was carried out on the interview transcripts.

RESULTS

Four main themes were identified based on the participants' views and opinions on how they experienced the review process and how they feel this process may be improved. The themes reflect the journey of the parents through the different stages of the review process: Throughout process; On leaving the hospital; Interaction with the hospital 'waiting in limbo'; Review itself. Identified subthemes highlighted essential aspects of this process and care provided to parents. For the parents, open, honest communication with staff, as well as having a key hospital contact was essential. Parents wished to provide feedback on their experience and wanted to be included in the review of their baby's death, in a way that was sensitive to their needs and the hospital's schedule.

CONCLUSION

A respectful, flexible system that allows bereaved parents' involvement in their baby's perinatal death review and is tailored to their needs is essential. A collaborative process between staff and parents can highlight clinical areas in need of change, enhance lessons learned, improve bereavement services and may prevent future perinatal deaths.

PUBLIC CONTRIBUTION

Bereaved parents were interviewed for this study.

摘要

引言

婴儿的死亡对父母、家庭和相关工作人员来说都是毁灭性的打击。让悲痛欲绝的父母参与到他们孩子的护理中，并参与到妇产科围产儿死亡评审中，可以帮助父母应对丧亲之痛并规划未来。在爱尔兰，悲痛欲绝的父母通常没有参与到这个评审过程中。我们的研究旨在评估父母对如何以对他们和评审过程本身有益的方式适当参与妇产科围产儿死亡评审的看法。

方法

邀请爱尔兰的悲痛欲绝的父母（n=20）参加半结构化访谈。对访谈记录进行主题分析。

结果

根据参与者对评审过程的看法和意见，以及他们对如何改进评审过程的看法，确定了四个主要主题。这些主题反映了父母在评审过程中的不同阶段的经历：贯穿整个过程；离开医院后；与医院“等待的困境”的互动；评审本身。确定的子主题突出了这个过程和为父母提供的护理的重要方面。对父母来说，与工作人员进行坦诚、诚实的沟通，以及有一名主要的医院联系人是至关重要的。父母希望对自己的经历提供反馈，并希望以一种对他们的需求和医院的日程安排敏感的方式参与到他们孩子死亡的评审中。