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从事艾滋病病毒研究的黑人女性:交叉性、位置性以及我们致力于建立一个公正研究事业的承诺。

Black women in HIV research: Intersectionality, positionality and our commitment to build a just research enterprise.

作者信息

Campbell Danielle M, Stockman Jamila K

机构信息

Division of Infectious Diseases and Global Public Health, Department of Medicine, School of Medicine, University of California, San Diego, La Jolla, CA, USA.

College of Medicine, Charles R. Drew University of Medicine and Science, Los Angeles, CA, USA.

出版信息

Womens Health (Lond). 2024 Jan-Dec;20:17455057241305071. doi: 10.1177/17455057241305071.

Abstract

Black women in the United States are disproportionately affected by human immunodeficiency virus (HIV) and are less likely to be represented among HIV clinical research participants relative to their cumulative HIV burden. Likewise, Black women are underrepresented in large federally funded HIV research portfolios. Extensive research has demonstrated that Black applicants and women applicants are less likely to receive R01 level funding from the National Institutes of Health, among all applicants. Support for a diverse biomedical research workforce, particularly researcher-participant concordance, has been widely accepted as a much-needed strategy to advance health outcomes among racial and ethnic and sex and gender minority communities. The benefits of employing a diverse research workforce include building trust among historically marginalized populations and support for diverse perspectives among investigative teams. In this paper, we explore intersectional challenges specific to Black women researchers in the development and implementation of HIV research, intervention, and programming efforts which include perceptions of Blackness, HIV research "turf," inequitable funding, institutional difficulties hiring Black women with lived experiences, and limitations in participant connectedness following study completion. We emphasize proposed solutions to support equitable, ethical, and culturally appropriate advancements in ending the HIV epidemic which are contextualized within Black women's unique intersectional identities and experiences.

摘要

美国黑人女性受人类免疫缺陷病毒(HIV)的影响尤为严重,而且相对于她们累积的HIV负担而言,在HIV临床研究参与者中所占比例较低。同样,在联邦政府资助的大型HIV研究项目中,黑人女性的代表性也不足。大量研究表明,在所有申请者中,黑人申请者和女性申请者获得美国国立卫生研究院R01级别资助的可能性较小。支持多元化的生物医学研究队伍,尤其是研究人员与参与者的一致性,已被广泛认为是改善种族和族裔以及性与性别少数群体健康状况的一项急需战略。雇佣多元化研究队伍的好处包括在历史上被边缘化的人群中建立信任,以及支持调查团队的多元化观点。在本文中,我们探讨了黑人女性研究人员在开展和实施HIV研究、干预及项目工作时所面临的交叉性挑战,这些挑战包括对黑人身份的认知、HIV研究“领域”、资金不公平、机构在招聘有实际生活经历的黑人女性时遇到的困难,以及研究结束后参与者联系方面的局限性。我们强调了为支持在终结HIV流行方面实现公平、符合伦理且在文化上适当的进展而提出的解决方案,这些方案是基于黑人女性独特的交叉身份和经历而制定的。

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