Devantier Minna, Olsen Marianne, Neergaard Mette Asbjoern, Wahlberg Ayo, Boensvang Natasha Nybro, Larsen Hanne Bækgaard
Department of Pediatrics and Adolescent Medicine, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Department of Pediatrics and Adolescent Medicine, Aalborg University Hospital, Aalborg, Denmark.
Eur J Oncol Nurs. 2025 Feb;74:102768. doi: 10.1016/j.ejon.2024.102768. Epub 2024 Dec 16.
Siblings of children with cancer experience the consequences of their brother or sister's disease and treatment firsthand, often causing social and school-related difficulties. This study aimed to gather parents' and siblings' feedback on a proposal for a school-based social and educational support intervention for siblings with the goal of tailoring the program to meet the needs of siblings.
Adopting a criterion sampling strategy, we conducted interviews with 20 parents and 11 siblings, aged 7-19 years, of children with cancer. During the interviews, we introduced a proposal for a school-based intervention as part of a co-creation design. Data were examined by content analysis.
The analysis showed that both parents and siblings recognized: 1) the need to inform the class about the family's situation, 2) the need for the timing and content of the support to align with the family's stage in the cancer journey. 3) Parents' concerns centered on potentially imposing experiences on siblings, losing school as a 'free space', and the risk of siblings standing out. 4) Siblings' concerns related to a fear of losing control over the cancer-related information at school and the reactions of peers. The final SUPREME intervention involved clarifying family meetings before two educational, nurse-led school visits addressing challenges relevant to siblings' academic and social lives.
The participants' responses to the intervention proposal played a key role in shaping the final intervention, encompassing valuable insights into precautions necessary for implementing school-based support for siblings of children with cancer.
癌症患儿的兄弟姐妹会直接体验到其兄弟姐妹疾病及治疗的后果，这常常会导致社交和与学校相关的困难。本研究旨在收集家长和兄弟姐妹对一项针对兄弟姐妹的校内社会和教育支持干预提案的反馈，以期调整该项目以满足兄弟姐妹的需求。
我们采用标准抽样策略，对20名家长以及11名年龄在7至19岁之间的癌症患儿的兄弟姐妹进行了访谈。在访谈过程中，我们介绍了一项作为共同设计一部分的校内干预提案。通过内容分析对数据进行了审查。
分析表明，家长和兄弟姐妹都认识到：1）有必要向班级告知家庭情况；2）支持的时间和内容需要与家庭在癌症病程中的阶段相匹配；3）家长的担忧集中在可能给兄弟姐妹带来的经历、失去学校这个“自由空间”以及兄弟姐妹可能会引人注目的风险；4）兄弟姐妹的担忧与害怕在学校失去对癌症相关信息的掌控以及同龄人的反应有关。最终的SUPREME干预措施包括在两次由护士主导的校内教育访问之前明确家庭会议，这些访问解决了与兄弟姐妹的学业和社交生活相关的挑战。
参与者对干预提案的反应在形成最终干预措施方面发挥了关键作用，其中包含了对为癌症患儿的兄弟姐妹实施校内支持所需预防措施的宝贵见解。
