Tsimicalis Argerie, Genest Laurence, Stevens Bonnie, Ungar Wendy J, Barr Ronald
1 McGill University, Montreal, Quebec, Canada.
2 Shriners Hospitals for Children-Canada, Montreal, Quebec, Canada.
J Pediatr Oncol Nurs. 2018 Mar/Apr;35(2):118-131. doi: 10.1177/1043454217741875. Epub 2017 Dec 1.
Families of children with cancer are confronted with unexpected out-of-pocket expenses and productivity costs associated with the diagnosis. One productivity cost that falls on children is the impact of cancer on children's school attendance, performance, and activities (eg, play, friendships, and socialization). Nested within the Childhood Cancer Cost Study, this qualitative descriptive study used convenience sampling to recruit and interview parents of children newly diagnosed with cancer. Content analysis techniques were used to inductively descriptive the semistructured interview data. Sixty-six parents of 65 children with cancer and of 73 siblings participated. The most commonly reported productivity loss in children with cancer was school absenteeism mainly due to cancer treatment. Children fell behind their classmates academically and lost important social time with peers. A few siblings also fell behind their peers primarily due to limited parental attention. Parents adopted various strategies to lessen the impact of the diagnosis on their children's school attendance, performance, and activities. Providing parents with additional resources and support may optimize their children's academic and social reintegration into school.
癌症患儿家庭面临着与诊断相关的意外自付费用和生产力成本。落在儿童身上的一项生产力成本是癌症对儿童上学出勤率、学业表现和活动（如玩耍、友谊和社交）的影响。在儿童癌症成本研究中，这项定性描述性研究采用便利抽样法招募并采访了新诊断出癌症的儿童的父母。内容分析技术被用于归纳描述半结构化访谈数据。65名癌症患儿的66名父母以及73名兄弟姐妹参与了研究。癌症患儿最常报告的生产力损失是主要由于癌症治疗导致的缺课。孩子们在学业上落后于同学，失去了与同龄人重要的社交时间。一些兄弟姐妹也主要由于父母关注有限而落后于同龄人。父母采取了各种策略来减轻诊断对孩子上学出勤率、学业表现和活动的影响。为父母提供额外的资源和支持可能会优化他们孩子在学业和社交方面重新融入学校的情况。
