Özgüven Öztornacı Beste, Ardahan Akgül Esra, Yanar Nisa, Akyol Selda, Yetim Perihan, Baş Gülay, Yıldırım Sarı Hatice, Dündar Bumin Nuri
İzmir Kâtip Çelebi University Faculty of Health Sciences, Department of Pediatric Nursing, İzmir, Türkiye
İzmir Kâtip Çelebi University Institute of Health Sciences, Department of Pediatric Nursing, İzmir, Türkiye
J Clin Res Pediatr Endocrinol. 2025 May 27;17(2):176-184. doi: 10.4274/jcrpe.galenos.2024.2024-4-7. Epub 2024 Dec 23.
Type 1 diabetes mellitus (T1D) is a chronic disease that is diagnosed relatively often in childhood and adolescence. However, care and metabolic control are difficult for both adolescents and their parents. Parental participation in the care and treatment process, especially when adolescents are developing autonomy and taking responsibility for self-care, affects both the adolescent’s perception of autonomy and may cause difficulties in self-management. This study was conducted to determine the effect of parental support on adolescents’ self-efficacy, quality of life (QoL) and glycaemic control in adolescents with T1D.
This study was descriptive and cross-sectional. Descriptive questionnaires, The Collaborative Parental Involvement Scale for Adolescents with T1D, Diabetes Management Self-efficacy Scale for Adolescents with T1D and QoL Scale in Children with Diabetes Mellitus (PedsQL 3.0) were administered to 79 adolescents with T1D. Laboratory health records were examined about participants hemoglobin A1c (HbA1c) levels measured in the last 3 months.
There was no relationship between parental collaboration and adolescent’s HbA1c levels. However, there was a moderate positive relationship between parental collaboration and adolescent’s QoL (p=0.043) and a strong positive relationship between parental collaboration and adolescent’s diabetes management self-efficacy (p<0.001).
Adolescents who self-managed diabetes with the support of both parents, especially their fathers, who were not school absentees and had regular blood glucose measurements had better QoL. There was no relationship between HbA1c levels and parental co-operation, but there was a strong relationship between parental cooperation and adolescent self-efficacy.
1型糖尿病（T1D）是一种常在儿童期和青少年期被诊断出的慢性疾病。然而，青少年及其父母在护理和代谢控制方面都面临困难。父母参与护理和治疗过程，尤其是在青少年发展自主性并对自我护理负责时，会影响青少年对自主性的认知，也可能在自我管理方面造成困难。本研究旨在确定父母支持对T1D青少年自我效能、生活质量（QoL）和血糖控制的影响。
本研究为描述性横断面研究。对79名T1D青少年发放描述性问卷、T1D青少年父母协作参与量表、T1D青少年糖尿病管理自我效能量表以及糖尿病儿童生活质量量表（儿童生活质量量表3.0版）。检查参与者过去3个月血红蛋白A1c（HbA1c）水平的实验室健康记录。
父母协作与青少年的HbA1c水平之间没有关系。然而，父母协作与青少年的生活质量之间存在中度正相关（p = 0.043），父母协作与青少年的糖尿病管理自我效能之间存在强正相关（p < 0.001）。
在父母，尤其是父亲的支持下自我管理糖尿病、不缺课且定期测量血糖的青少年生活质量更好。HbA1c水平与父母合作之间没有关系，但父母合作与青少年自我效能之间存在密切关系。
