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JURNI(与患者互动理解并响应需求的旅程):马来西亚大学医学中心用于乳腺癌及时诊断和治疗的院内导航应用程序。

JURNI (Journeying with Patients' Understanding and Responding to Needs Interactively): An In-Hospital Navigation Application for Timely Diagnosis and Treatment of Breast Cancer at the University Malaya Medical Centre.

作者信息

Dhillon Sarinder Kaur, Kalhor Foad, Seng Kai Wong, Mei Sze Teh, Mohd Shariff Nisha, Sekaran Manisha, Taib Nur Aishah

机构信息

Data Science and Bioinformatics Laboratory, Institute of Biological Sciences, Faculty of Science, Universiti Malaya, Kuala Lumpur, Malaysia.

Subang Jaya Medical Centre, Selangor, Malaysia.

出版信息

Health Serv Insights. 2024 Dec 20;17:11786329241309309. doi: 10.1177/11786329241309309. eCollection 2024.

DOI:10.1177/11786329241309309
PMID:39712000
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11662331/
Abstract

One of the main challenges in breast cancer management is health system literacy to provide optimal and timely diagnosis and treatments within complex and multidisciplinary health system environments. Digitalised patient navigation programs have been developed and found to be helpful in high- and low-resource settings, but gaps remain in finding cost-effective navigation in the public sector in Malaysia, where resources are scarce and unstable. Hence, we set out to develop a virtual patient navigation application for breast cancer patients to enhance knowledge about cancer diagnosis and treatments and provide a tracking mechanism to ensure quality care. This paper identifies the requirement for in-hospital patients' navigational needs for cancer diagnosis, the cancer diagnosis and treatment process's components and pathways, developing the app and usability study on the usefulness of a cancer navigation mobile application in navigating cancer care at the University of Malaya Medical Centre (UMMC). Key features found when designing the in-hospital application are managing the medical appointments, finding the location of each medical department, and providing information to breast cancer patients, healthcare managers and providers to ensure a coordinated care pathway. In future work, we plan to implement the JURNI in-hospital patient navigation and perform usability studies involving the actual patients, physicians and administrators. We are also working towards enhancing data security, adding other local languages and artificial intelligence capabilities to improve the patient's journey.

摘要

乳腺癌管理的主要挑战之一是在复杂的多学科卫生系统环境中具备卫生系统素养,以提供最佳和及时的诊断与治疗。数字化患者导航项目已被开发出来,并且发现在资源丰富和匮乏的环境中都很有帮助,但在马来西亚公共部门寻找具有成本效益的导航方面仍存在差距,该国资源稀缺且不稳定。因此,我们着手为乳腺癌患者开发一个虚拟患者导航应用程序,以增强对癌症诊断和治疗的了解,并提供一种跟踪机制以确保优质护理。本文确定了住院患者对癌症诊断的导航需求、癌症诊断和治疗过程的组成部分及途径,开发该应用程序,并对马来亚大学医学中心(UMMC)一款癌症导航移动应用程序在引导癌症护理方面的有用性进行了可用性研究。设计住院应用程序时发现的关键特性包括管理医疗预约、查找每个医疗科室的位置,以及向乳腺癌患者、医疗保健管理人员和提供者提供信息,以确保协调的护理途径。在未来的工作中,我们计划实施JURNI住院患者导航,并开展涉及实际患者、医生和管理人员的可用性研究。我们还在努力加强数据安全,添加其他当地语言和人工智能功能,以改善患者就医体验。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7164/11662331/606db479c0b8/10.1177_11786329241309309-fig12.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7164/11662331/9eebaadfb193/10.1177_11786329241309309-fig7.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7164/11662331/b1f06f785324/10.1177_11786329241309309-fig8.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7164/11662331/6b4ef193904e/10.1177_11786329241309309-fig9.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7164/11662331/9b6f83dff158/10.1177_11786329241309309-fig10.jpg
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An Artificial Intelligence-Enabled Pipeline for Medical Domain: Malaysian Breast Cancer Survivorship Cohort as a Case Study.
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Patient navigation services for cancer care in low-and middle-income countries: A scoping review.中低收入国家癌症护理中的患者导航服务:范围综述。
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