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本文引用的文献

1
Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings.探索图雷特综合征和抽动障碍在线支持社区中的社会支持:发帖分析。
J Med Internet Res. 2022 Oct 4;24(10):e34403. doi: 10.2196/34403.
2
"I often have to explain to school staff what she needs". School experiences of non-autistic siblings growing up with an autistic brother or sister.“我经常需要向学校工作人员解释她的需求”。与自闭症兄弟姐妹一起长大的非自闭症兄弟姐妹的学校经历。
Res Dev Disabil. 2022 Oct;129:104323. doi: 10.1016/j.ridd.2022.104323. Epub 2022 Aug 18.
3
From early intervention to elementary school: A survey of transition support practices for children with autism spectrum disorders.从早期干预到小学:自闭症谱系障碍儿童过渡支持实践调查。
Res Dev Disabil. 2019 May;88:30-41. doi: 10.1016/j.ridd.2019.02.006. Epub 2019 Mar 6.
4
Parent descriptions of the presentation and management of anxiousness in children on the autism spectrum.家长对自闭症谱系儿童焦虑表现和管理的描述。
Autism. 2019 May;23(4):980-992. doi: 10.1177/1362361318794031. Epub 2018 Aug 16.
5
Broken bridges-new school transitions for students with autism spectrum disorder: A systematic review on difficulties and strategies for success.自闭症谱系障碍学生的“断桥”-新学校过渡:成功的困难和策略的系统评价。
Autism. 2019 Feb;23(2):306-325. doi: 10.1177/1362361318754529. Epub 2018 Feb 19.
6
'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum.“这些点就是无法连接起来”:了解自闭症谱系儿童家庭的支持需求。
Autism. 2018 Jul;22(5):571-584. doi: 10.1177/1362361316687989. Epub 2017 Apr 28.
7
'Transitions are Scary for our Kids, and They're Scary for us': Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism.“转变对我们的孩子来说很可怕,对我们来说也很可怕”:家庭成员和青少年对自闭症患者向成年过渡挑战的看法。
J Appl Res Intellect Disabil. 2015 Nov;28(6):548-60. doi: 10.1111/jar.12150. Epub 2015 Mar 5.
8
The transition from primary to secondary school in mainstream education for children with autism spectrum disorder.自闭症谱系障碍儿童在主流教育体系中从小学到中学的过渡。
Autism. 2016 Jan;20(1):5-13. doi: 10.1177/1362361314562616. Epub 2015 Jan 9.
9
Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation.自闭症谱系障碍对父母和家庭的影响:干预评估的综述和建议模型。
Clin Child Fam Psychol Rev. 2012 Sep;15(3):247-77. doi: 10.1007/s10567-012-0119-6.
10
Living in a world of our own: the experience of parents who have a child with autism.生活在自己的世界里:自闭症患儿家长的经历。
Qual Health Res. 2008 Aug;18(8):1075-83. doi: 10.1177/1049732308320112.

中学过渡对自闭症儿童家庭的心理影响。

The psychological impact of the secondary school transition on families of autistic children.

作者信息

Yates L, Keville S, Ludlow A

机构信息

Department of Psychology, Sport and Geography, University of Hertfordshire, Hatfield, UK.

出版信息

Int J Dev Disabil. 2023 Feb 6;70(7):1207-1217. doi: 10.1080/20473869.2023.2170004. eCollection 2024.

DOI:10.1080/20473869.2023.2170004
PMID:39712444
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11660398/
Abstract

The transition from primary to secondary school is a stressful period for autistic individuals. However, less is known about parental experiences of the school transition, and its impact on the family. This study explored mothers' perspectives on the psychological impact of the transition to secondary school for their autistic children and their families. Using Interpretative Phenomenological Analysis, semi-structured interviews were analysed to explore the experiences of eight mothers of autistic children at the end of their child's first year in secondary school. The analysis revealed two superordinate themes: lack of available support and detrimental psychological impact on the family. Mothers reported the negative impact the transition had on themselves, their child, and the wider family. The importance of pre- and ongoing transition support was highlighted to reduce the concerns of children and their parents throughout the transition process. The findings highlighted the need for autism-specific individualized guidance, as well as considering the potential for transition issues to impact on siblings.

摘要

从小学到中学的过渡对自闭症患者来说是一个压力很大的时期。然而,对于家长在孩子升学过程中的经历及其对家庭的影响,我们了解得较少。本研究探讨了母亲们对于自闭症孩子及其家庭向中学过渡所产生的心理影响的看法。采用解释现象学分析方法,对八名自闭症孩子在中学一年级末时其母亲的半结构化访谈进行了分析。分析揭示了两个上位主题:缺乏可用的支持以及对家庭产生的有害心理影响。母亲们报告了这种过渡对她们自己、孩子以及整个家庭所产生的负面影响。强调了入学前和持续的过渡支持对于在整个过渡过程中减轻孩子及其父母担忧的重要性。研究结果突出了针对自闭症的个性化指导的必要性,同时也需要考虑过渡问题对兄弟姐妹可能产生的影响。