Woodgate Roberta L, Ateah Christine, Secco Loretta
Faculty of Nursing, University of Manitoba, Winnipeg, Manitoba, Canada.
Qual Health Res. 2008 Aug;18(8):1075-83. doi: 10.1177/1049732308320112.
In this article, we discuss findings of a hermeneutic phenomenological study that sought to describe the experiences of parents who have a child with autism. Qualitative interviews were conducted with parents from 16 families of children with autism residing in a western Canadian province. "Living in a world of our own" emerged as the essence of the parents' experiences. In "living in a world of our own," parents described a world of isolation. Three themes representing the essential challenging elements of the parents' experiences included vigilant parenting, sustaining the self and family, and fighting all the way. Although much is known about the fundamental importance of support to parents of children with chronic conditions and/or disabilities, findings from this study indicate that knowledge has not been adequately transferred to the care of children with autism.
在本文中，我们讨论了一项诠释现象学研究的结果，该研究旨在描述有自闭症孩子的家长的经历。我们对居住在加拿大西部一个省份的16个自闭症儿童家庭的家长进行了定性访谈。“生活在我们自己的世界里”成为了家长们经历的核心。在“生活在我们自己的世界里”，家长们描述了一个孤立的世界。代表家长经历中主要挑战因素的三个主题包括警惕育儿、维持自我和家庭以及一路抗争。尽管人们深知对患有慢性病和/或残疾儿童的家长提供支持至关重要，但这项研究的结果表明，相关知识尚未充分应用于自闭症儿童的照料中。
