Kemere K Jordan, Appelbaum Nital, Fremion Ellen
Department of Medicine, Baylor College of Medicine, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77020, USA.
School of Medicine, Baylor College of Medicine, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77020, USA.
Health Care Transit. 2024 Nov 19;2:100084. doi: 10.1016/j.hctj.2024.100084. eCollection 2024.
As the prevalence of intellectual and developmental disabilities (IDD) has increased over time, more youth with IDD will be transitioning into adult care. Individuals with IDD have a spectrum of behavioral, medical, adaptive, and home/community support needs depending on their cognitive ability, behavior concerns, mobility impairment, and/or medical complexity. Unfortunately, data suggests that adult primary care providers often lack knowledge about the condition-specific medical and adaptive needs of the IDD population leading to decreased access to adequate primary care.
To ultimately improve access to high quality healthcare for individuals with IDD, we created a 6-session virtual Project ECHO(R) (Extension for Community Healthcare Outcomes) telementoring course offered to an interprofessional audience.
We successfully launched this course, demonstrated statistically significant increased knowledge and confidence among attendees regarding six topics pertinent to this population, and had high levels of satisfaction from a diverse group of attendees.
Including nurses, social workers, advanced practice providers, physicians, and case managers in this course made for robust discussion in the delivery of high-quality care for this population. This model is a viable option to increase knowledge and confidence surrounding primary care for youth and adults with IDD.
随着智力和发育障碍（IDD）的患病率随时间推移而上升，越来越多患有IDD的青少年将过渡到成人护理阶段。患有IDD的个体根据其认知能力、行为问题、行动障碍和/或医疗复杂性，有一系列行为、医疗、适应性以及家庭/社区支持需求。不幸的是，数据表明成人初级保健提供者往往缺乏对IDD人群特定病情的医疗和适应性需求的了解，导致获得充分初级保健的机会减少。
为最终改善患有IDD的个体获得高质量医疗保健的机会，我们为跨专业受众创建了一个为期6节的虚拟“社区医疗成果扩展计划（Project ECHO®）”远程指导课程。
我们成功推出了该课程，证明了参加者在与该人群相关的六个主题方面的知识和信心在统计学上有显著提高，并且来自不同群体的参加者满意度很高。
将护士、社会工作者、高级执业提供者、医生和病例管理人员纳入本课程，有助于在为该人群提供高质量护理方面进行深入讨论。这种模式是增加对患有IDD的青少年和成人初级保健的知识和信心的可行选择。
