Temür Büşra Nur, Düzgün Mustafa Volkan, Aksoy Nilgün, Işler Ayşegül, Çetinkaya Elif
Faculty of Nursing, Akdeniz University, Antalya, 07070, Türkiye.
Akdeniz University Hospital, Antalya, 07070, Türkiye.
Qual Life Res. 2025 Apr;34(4):1017-1026. doi: 10.1007/s11136-024-03879-7. Epub 2024 Dec 26.
Despite advances in transplant procedures, children and adolescents still face some challenges post-transplant and are at high risk for psychiatric, academic, and social problems. This study aims to explore the lived experiences of adolescent kidney transplant recipients through interviews and the use of mandala art therapy.
This study adopted a descriptive phenomenological design and thematic analysis approach based on Husserl's philosophy. The sample included kidney transplant recipients aged 12-18 years admitted to the pediatric nephrology polyclinic of a university hospital in southern Türkiye. Data were collected through in-depth interviews conducted during a mandala art activity with 14 adolescent kidney transplant recipients. The qualitative data were analyzed using Colaizzi's seven-stage qualitative analysis method, which is suitable to the descriptive phenomenological design employed in the present study.
Four themes and seven subthemes emerged from the data related to the problems and experiences of adolescents with kidney transplantation and growing up with a new kidney. (1) Education, (2) Ideas about the kidney; including the sub-themes "What the kidney transplant process gave them, Feelings about their kidneys", (3) Family; including the sub-themes "Relationship with the donor, Relationship with siblings", (4) Social environment; including the sub-themes "Experiences with hospital, Relationship with friends and Desire for friendship with a transplanted Peer".
Mandala art therapy-assisted interviews are an effective communication method for adolescent kidney transplant recipients to express their feelings and thoughts and to look at life from a broader perspective. Understanding the life experiences of adolescents with kidney transplantation and the difficulties they face may enable better and more systematic planning of the care to be given to them.
尽管移植手术取得了进展，但儿童和青少年在移植后仍面临一些挑战，并且有出现精神、学业和社交问题的高风险。本研究旨在通过访谈和使用曼陀罗艺术疗法来探索青少年肾移植受者的生活经历。
本研究采用基于胡塞尔哲学的描述性现象学设计和主题分析方法。样本包括在土耳其南部一家大学医院儿科肾病门诊就诊的12至18岁肾移植受者。通过在曼陀罗艺术活动期间对14名青少年肾移植受者进行深入访谈来收集数据。使用适合本研究中采用的描述性现象学设计的科莱齐七阶段定性分析方法对定性数据进行分析。
从与青少年肾移植及带着新肾成长的问题和经历相关的数据中出现了四个主题和七个子主题。（1）教育，（2）关于肾脏的想法；包括子主题“肾移植过程给他们带来了什么、对自己肾脏的感受”，（3）家庭；包括子主题“与捐赠者的关系、与兄弟姐妹的关系”，（4）社会环境；包括子主题“在医院的经历、与朋友的关系以及与移植同龄人建立友谊的渴望”。
曼陀罗艺术疗法辅助访谈是一种有效的沟通方法，可帮助青少年肾移植受者表达自己的感受和想法，并从更广阔的视角看待生活。了解青少年肾移植受者的生活经历及其面临的困难，可能有助于更好、更系统地规划给予他们的护理。
