Knoebl Rachel, Polfuss Michele, McAndrew Natalie S, Kenney Ansley E, Vang Mychoua, Chapman Shelley, Lerret Stacee M
Medical College of Wisconsin, Milwaukee, Wisconsin, USA.
School of Nursing, Children's Wisconsin, Department of Nursing Research and Evidence-Based Practice, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA.
Pediatr Transplant. 2025 May;29(3):e70069. doi: 10.1111/petr.70069.
Solid organ transplantation requires complex and ongoing medical management that impacts the family system. However, the experiences of siblings of transplant recipients are not well described. Therefore, the purpose of this study was to elucidate the perspectives of siblings of pediatric kidney and liver transplant recipients.
Siblings (ages 12-17 years) of kidney and liver transplant recipients completed a semi-structured interview (Via Zoom) and demographic information. The interview data were analyzed using inductive content analysis.
Twelve adolescents (9 males, 2 females, 1 non-binary; M = 15.25 Years, SD = 2.13) completed a virtual interview. Four major themes emerged describing the transplant experience: (1) Transplant changes the family system: Impact on family relationships, dynamics, and cohesiveness, (2) Transplant affects social-emotional development and adjustment, (3) new meaning assigned to family and increased commitment to the health of sibling, and (4) growth from the transplant experience as a way to help others.
These findings affirm that the transplant event is distressing and impacts the sibling, their relationships, and family functioning in the moment and for years afterward. Opportunities exist to raise healthcare providers' awareness of providing care through a family lens, which can positively impact the patient and the family. These findings are an initial step toward developing interventions that incorporate siblings of transplant recipients in healthcare interactions and create a more family-inclusive model of care in the transplant setting.
实体器官移植需要复杂且持续的医疗管理，这会对家庭系统产生影响。然而，移植受者兄弟姐妹的经历却鲜有详尽描述。因此，本研究旨在阐明小儿肾移植和肝移植受者兄弟姐妹的观点。
肾移植和肝移植受者的兄弟姐妹（年龄在12 - 17岁之间）通过Zoom完成了一次半结构化访谈以及人口统计学信息采集。访谈数据采用归纳性内容分析法进行分析。
12名青少年（9名男性，2名女性，1名性别非二元；平均年龄M = 15.25岁，标准差SD = 2.13）完成了虚拟访谈。出现了四个描述移植经历的主要主题：（1）移植改变家庭系统：对家庭关系、动态及凝聚力的影响；（2）移植影响社会情感发展与适应；（3）家庭有了新的意义，对兄弟姐妹健康的责任感增强；（4）从移植经历中成长，以此帮助他人。
这些发现证实，移植事件令人痛苦，会在当下及之后数年影响兄弟姐妹、他们的关系以及家庭功能。存在提高医疗服务提供者从家庭视角提供护理意识的机会，这可对患者及其家庭产生积极影响。这些发现是朝着制定干预措施迈出的第一步，这些干预措施将移植受者的兄弟姐妹纳入医疗互动中，并在移植环境中创建更具家庭包容性的护理模式。
