Jessica Mellier, Aurélie Balis, Fabian Defraine, Quentin Vanderhofstadt, Léa Di Biagi, Marco Schetgen, Pierre D'Ans, Jennifer Foucart, Céline Mahieu, Ana Bengoetxea
Osteopathy Sciences Research Unit (URSO), Université Libre de Bruxelles (ULB), Brussels, Belgium.
Haute Ecole Libre de Bruxelles, HELB, Brussels, Belgium.
Health Expect. 2025 Feb;28(1). doi: 10.1111/hex.70129.
Chronic musculoskeletal pain (CMSP) is frequent in chronic diseases, decreasing the quality of life of these patients. In a survey conducted in Belgium in 2019, chronic pain was named by patients as the main factor of complexity in their lives. The objective of our research was to provide elements to understand why and how CMSP contributes to the complexity of these people's lives.
Qualitative study through semi-structured interviews.
The study was conducted in Belgium with French-speaking individuals. The interviews took place at the university, in a teaching hospital, in private clinics or in individuals' homes.
We included 24 individuals with CMSP and living complex situations. The recruitment was made in two phases in agreement with the grounded theory methodology and to reach the saturation of ideas.
The complexity experienced by people with CMSP turns around the notion of recognition, which can be broken down into 3 spheres: intimate, social and legal. The poor quality of listening and the fragmented vision of aid and care professionals generate a feeling of loneliness and incomprehension in the face of illness. The unsuitability of the world of work, the opacity of protocols and the attitude of medical experts reveal inequalities in access to recognition for immigrants and people of low socio-professional status.
The complexity of the situations experienced could be reduced by implementing health policies that facilitate: legal recognition of this illness; adaptability in the workplace; raising awareness about pain mechanisms; the risks of stigmatization and the need of interprofessional collaboration.
Patients and the public participated in the dissemination of our research and were able to help us with recruitment through social networks (call for participation published on Facebook by the association 'Aidants proches') or word of mouth. The presentation of preliminary results at conferences as well as the publication of a public article in Belgian journals (http://www.lejournaldumedecin.com/magazine/douleurs-chroniques-un-veritable-parcours-du-combattant/article-normal-63055.html?cookie_check=1671467500%22) facilitated the contact with the public.
慢性肌肉骨骼疼痛（CMSP）在慢性疾病中很常见，会降低这些患者的生活质量。在2019年比利时进行的一项调查中，慢性疼痛被患者列为其生活中复杂性的主要因素。我们研究的目的是提供要素，以了解CMSP为何以及如何导致这些人生活的复杂性。
通过半结构化访谈进行定性研究。
该研究在比利时针对说法语的人群开展。访谈在大学、教学医院、私人诊所或个人家中进行。
我们纳入了24名患有CMSP且生活状况复杂的个体。根据扎根理论方法分两个阶段进行招募，以达到观点饱和。
患有CMSP的人所经历的复杂性围绕着认可这一概念，可分为三个领域：亲密、社会和法律。倾听质量差以及援助和护理专业人员的碎片化看法，在面对疾病时会产生孤独感和不被理解的感觉。工作环境不合适、协议不透明以及医学专家的态度，揭示了移民和社会职业地位低的人在获得认可方面存在的不平等。
通过实施有助于以下方面的卫生政策，可以降低所经历情况的复杂性：对这种疾病的法律认可；工作场所的适应性；提高对疼痛机制的认识；污名化风险以及跨专业合作的必要性。
患者和公众参与了我们研究的传播，并能够通过社交网络（“亲近助手”协会在脸书上发布的参与呼吁）或口口相传帮助我们进行招募。在会议上展示初步结果以及在比利时期刊上发表公开文章（http://www.lejournaldumedecin.com/magazine/douleurs-chroniques-un-veritable-parcours-du-combattant/article-normal-63055.html?cookie_check=1671467500%22）促进了与公众的联系。
