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针对青春期自闭症谱系障碍青少年护理的试点教育干预措施。

Pilot educational intervention for the care of adolescents with autism spectrum disorder during puberty.

作者信息

McMahon Marcie, Cooney-Miner Dianne, Bourne Melissa, Brown Holly

机构信息

Wegmans School of Nursing, St. John Fisher University, Rochester, New York.

Golisano Institute for Developmental Disability Nursing, Rochester, New York.

出版信息

J Am Assoc Nurse Pract. 2025 Jan 1;37(1):36-43. doi: 10.1097/JXX.0000000000001033.

Abstract

Puberty is a particularly vulnerable time for individuals with autism spectrum disorder (ASD) during which baseline challenges are exacerbated, functioning often deteriorates, and additional barriers emerge. Specific concerns include increased vulnerability, decreased safety, and increased mood and behavioral disturbances. Youth with ASD need guidance and explicit instruction/skill development on topics such as hygiene/self-care, appropriate sexual activity, and menstruation management. Lack of provider preparation, knowledge, and confidence, along with stigma about the needs and capabilities of individuals with ASD, are major barriers to care. Initiatives to expand the preparation of health care personnel, including nurse practitioners, to provide quality care to individuals with ASD are essential. This article describes the results of a pilot project using a brief, self-guided educational intervention for developing and practicing family nurse practitioners. Before and after viewing the educational module, participants completed author-created surveys assessing their self-perceived knowledge, attitudes, and intent to change practice. Expert analysis of survey items provided face validity. Comparison of mean presurvey and postsurvey responses showed significant increases in self-perceived knowledge, attitudes, and intent to implement practice changes. Lack of confidence was endorsed as the most common remaining barrier to change. Findings indicate that the brief module improved participants' self-reported knowledge, attitudes, and intent to implement practice recommendations. Such interventions can be easily incorporated into nursing education and professional development and are appropriate for dissemination to nurse practitioners working within and outside primary care settings, as well as to related service providers.

摘要

青春期对于患有自闭症谱系障碍(ASD)的个体来说是一个特别脆弱的时期,在此期间,基线挑战会加剧,功能往往会恶化,还会出现更多障碍。具体问题包括易受伤害性增加、安全性降低以及情绪和行为干扰增加。患有ASD的青少年在诸如卫生/自我护理、适当的性活动和月经管理等主题上需要指导和明确的指导/技能培养。提供者准备不足、知识欠缺和信心不足,以及对ASD患者需求和能力的污名化,都是护理的主要障碍。开展相关举措,扩大包括执业护士在内的医护人员的准备工作,以便为ASD患者提供优质护理至关重要。本文描述了一个试点项目的结果,该项目使用一种简短的、自我指导的教育干预措施来培养和训练家庭执业护士。在观看教育模块之前和之后,参与者完成了作者创建的调查问卷,评估他们自我感知的知识、态度以及改变实践的意愿。对调查问卷项目的专家分析提供了表面效度。对调查前和调查后平均回复的比较显示,自我感知的知识、态度以及实施实践改变的意愿有显著提高。缺乏信心被认为是最常见的阻碍改变的因素。研究结果表明,这个简短的模块提高了参与者自我报告的知识、态度以及实施实践建议的意愿。此类干预措施可以轻松纳入护理教育和专业发展中,适合传播给在初级保健机构内外工作的执业护士以及相关服务提供者。

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