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帕金森病患者远程康复的满意度、有效性和可用性。

Satisfaction, effectiveness, and usability of telerehabilitation for Parkinson's disease patients.

作者信息

Okusa Shohei, Saegusa Hiroki, Miyakawa Kazuya, Tsutsumi Yuta, Ishida Sae, Nishikata Kyoko, Nukariya Tomonori, Tezuka Toshiki, Nihei Yoshihiro, Kitagawa Yasuhiro, Kubo Shin-Ichiro, Suzuki Norihiro, Nakahara Jin, Seki Morinobu

机构信息

Department of Neurology, Keio University School of Medicine, Tokyo, Japan; Department of Neurology, Shonan Keiiku Hospital, Kanagawa, Japan; Parkinson's Disease Center, Keio University Hospital, Tokyo, Japan.

Department of Rehabilitation, Shonan Keiiku Hospital, Kanagawa, Japan.

出版信息

J Rehabil Med. 2025 Jan 3;57:jrm39819. doi: 10.2340/jrm.v57.39819.

Abstract

OBJECTIVE

To evaluate the satisfaction, effectiveness, and usability of a telerehabilitation programme for Parkinson's disease (PD) patients.

DESIGN

Prospective cohort study.

SUBJECTS/PATIENTS: PD patients based on the diagnostic criteria for clinically established or probable PD published by the International Parkinson and Movement Disorder Society.

METHODS

The telerehabilitation was conducted twice a week via a Zoom meeting platform, using pre-recorded rehabilitation contents shared during the sessions. In this study we administered several questionnaires, i.e., a self-report questionnaire on the effectiveness of telerehabilitation, the Parkinson's Disease Questionnaire-39 (PDQ-39), and the Telehealth Usability Questionnaire (TUQ), in order to evaluate the satisfaction, effectiveness, and usability of our telerehabilitation programme.

RESULTS

Fifty-six PD patients were included in the analysis. After 6 months, 91.1% expressed satisfaction with the telerehabilitation and 91.9% reported telerehabilitation had helped them develop an exercise routine, but the PDQ-39 showed no significant improvement in quality of life. The TUQ showed higher scores for Usefulness (76.1%), Ease of Use and Learnability (73.5%), Interface Quality (75.4%), and Satisfaction and Future Use (82.2%).

CONCLUSION

Satisfaction with telerehabilitation was high, particularly with regard to positive effects on emotional well-being. Telerehabilitation usability was also found to be high.

摘要

目的

评估针对帕金森病(PD)患者的远程康复计划的满意度、有效性和可用性。

设计

前瞻性队列研究。

研究对象/患者:基于国际帕金森和运动障碍协会发布的临床确诊或疑似PD诊断标准的PD患者。

方法

通过Zoom会议平台每周进行两次远程康复,使用会议期间共享的预先录制的康复内容。在本研究中,我们发放了几份问卷,即一份关于远程康复有效性的自我报告问卷、帕金森病问卷-39(PDQ-39)和远程医疗可用性问卷(TUQ),以评估我们的远程康复计划的满意度、有效性和可用性。

结果

56名PD患者纳入分析。6个月后,91.1%的患者对远程康复表示满意,91.9%的患者报告远程康复帮助他们养成了锻炼习惯,但PDQ-39显示生活质量无显著改善。TUQ在有用性(76.1%)、易用性和可学习性(73.5%)、界面质量(75.4%)以及满意度和未来使用意愿(82.2%)方面得分较高。

结论

对远程康复的满意度较高,尤其是对情绪健康的积极影响。远程康复的可用性也较高。

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Development of the Telehealth Usability Questionnaire (TUQ).远程医疗可用性问卷(TUQ)的开发。
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