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Online health information seeking behavior among breast cancer patients and survivors: a scoping review.

作者信息

Chen Jialin, Duan Yiwen, Xia Haozhi, Xiao Runxi, Cai Tingting, Yuan Changrong

机构信息

School of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China.

School of Nursing, Nanjing University of Chinese Medicine, Nanjing, 210023, Jiangsu, China.

出版信息

BMC Womens Health. 2025 Jan 3;25(1):1. doi: 10.1186/s12905-024-03509-x.


DOI:10.1186/s12905-024-03509-x
PMID:39754199
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11697865/
Abstract

PURPOSE: This scoping review aims to summarize online health information seeking (OHIS) behavior among breast cancer patients and survivors, identify research gaps, and offer insights for future studies. METHODS: Following Arksey and O'Malley's framework, we conducted a review across PubMed, Web of Science, CINAHL, MEDLINE, Cochrane, Embase, CNKI, Wanfang Data, and SinoMed, covering literature from 1 January 2014 to 13 August 2023. A total of 1,368 articles were identified, with 33 meeting the inclusion criteria. Two researchers independently screened, extracted, and summarized the data. RESULTS: The studies addressed three main themes:OHIS behavior, factors associated with OHIS, and intervention programs on OHIS. Key information sources included national or nonprofit cancer organizations' websites, search engines, and social media. Commonly sought information involved breast cancer knowledge, treatment options, and prognosis, with information seeking behaviors varying by disease stages. While patients valued the convenience and accessibility of online resources, dissatisfaction was common due to inaccurate or misleading content. Factors such as age, education, income, disease characteristics, and psychological factors significantly influenced OHIS behaviors. CONCLUSION: This review identifies significant gaps in exploring OHIS behavior among breast cancer patients and survivors, highlighting the inadequacy of current interventions. Future research should focus on diverse age groups, refine the language of web-based health information, enhance user comprehension of professional content, and develop tailored information systems for different stages of the health journey.

摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4117/11697865/65959f7fd0c9/12905_2024_3509_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4117/11697865/2277be6422a7/12905_2024_3509_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4117/11697865/65959f7fd0c9/12905_2024_3509_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4117/11697865/2277be6422a7/12905_2024_3509_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4117/11697865/65959f7fd0c9/12905_2024_3509_Fig2_HTML.jpg

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Online health information seeking behavior among breast cancer patients and survivors: a scoping review.

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Asia Pac J Oncol Nurs. 2025-6-13

[2]
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[3]
Qualitative study on the characteristics and dilemmas of eHealth literacy among family caregivers of breast cancer patients.

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[4]
Exploring the impact of discharged patients' characteristics on online health information-seeking behaviors: insights from patients' dilemmas.

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本文引用的文献

[1]
Global cancer statistics 2022: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries.

CA Cancer J Clin. 2024

[2]
Exploring the health information-seeking practices of breast cancer patients in a middle-income country with a diverse ethnic population: a cross-sectional investigation.

Support Care Cancer. 2023-9-27

[3]
Readability Analysis of Online Breast Cancer Surgery Patient Education Materials from National Cancer Institute-Designated Cancer Centers Compared with Top Internet Search Results.

Ann Surg Oncol. 2023-12

[4]
Women's experience of the health information process involving a digital information tool before commencing radiation therapy for breast cancer: a deductive interview study.

BMC Health Serv Res. 2023-8-9

[5]
Breast Cancer Survivors' Attitudes toward eMental Health: A Cross-Sectional Study.

Healthcare (Basel). 2023-7-3

[6]
Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design.

JMIR Cancer. 2023-5-17

[7]
What Is Known about Breast Cancer in Young Women?

Cancers (Basel). 2023-3-22

[8]
Health information seeking behaviour and decision making by patients undergoing breast cancer surgery: A qualitative study.

Health Info Libr J. 2023-3-2

[9]
Digital Trends, Digital Literacy, and E-Health Engagement Predictors of Breast and Colorectal Cancer Survivors: A Population-Based Cross-Sectional Survey.

Int J Environ Res Public Health. 2023-1-13

[10]
Relationship between family support, serum lipid knowledge and quality of life in Chinese breast cancer women with adjuvant endocrine therapy.

Support Care Cancer. 2022-12

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