Guo Chengcheng, Wang Yang, Dong Liting, Wu Juan, Guo Sijin
Xijing Hospital Department of Vascular and Endocrine Surgery Xi'an, Shaanxi, China.
Digit Health. 2025 May 26;11:20552076251346240. doi: 10.1177/20552076251346240. eCollection 2025 Jan-Dec.
OBJECTIVE: To explore the elements and dilemmas of eHealth literacy among family caregivers of breast cancer patients, providing a reference for improving their caregiving abilities. METHODS: From September to October 2023, a phenomenological research method was adopted. Semi-structured interviews were conducted with 10 family caregivers of breast cancer patients in the Department of Breast and Thyroid Surgery of a tertiary grade A hospital in Xi'an. Braun's thematic analysis method was used for data analysis. RESULTS: Two themes and six sub-themes were extracted. (1) Element characteristics: information acquisition ability, information discrimination ability, and information application ability. (2) Information dilemmas: information overload and chaos, difficulty in judging the authenticity and reliability of information, and obstacles in information application. CONCLUSION: There are many problems in the eHealth literacy of family caregivers of breast cancer patients. Medical staff should have provided guidance on information acquisition, conducted training on information discrimination and application, addressed information overload and chaos, strengthened information supervision, improved the proficiency of using e-communication tools, and provided more professional guidance to enhance their eHealth literacy and reduce their information-related distress.
目的:探讨乳腺癌患者家庭照护者的电子健康素养要素及困境,为提高其照护能力提供参考。 方法:2023年9月至10月,采用现象学研究方法。对西安市某三级甲等医院乳腺甲状腺外科的10名乳腺癌患者家庭照护者进行半结构式访谈。采用布劳恩主题分析法进行数据分析。 结果:提取出两个主题和六个子主题。(1)要素特征:信息获取能力、信息辨别能力和信息应用能力。(2)信息困境:信息过载与混乱、难以判断信息的真实性和可靠性、信息应用存在障碍。 结论:乳腺癌患者家庭照护者的电子健康素养存在诸多问题。医务人员应在信息获取方面给予指导,开展信息辨别与应用培训,解决信息过载与混乱问题,加强信息监管,提高使用电子通讯工具的熟练度,并提供更专业的指导,以提高其电子健康素养,减轻其信息相关困扰。
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