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乳腺癌患者家庭照顾者的电子健康素养特征与困境的质性研究

Qualitative study on the characteristics and dilemmas of eHealth literacy among family caregivers of breast cancer patients.

作者信息

Guo Chengcheng, Wang Yang, Dong Liting, Wu Juan, Guo Sijin

机构信息

Xijing Hospital Department of Vascular and Endocrine Surgery Xi'an, Shaanxi, China.

出版信息

Digit Health. 2025 May 26;11:20552076251346240. doi: 10.1177/20552076251346240. eCollection 2025 Jan-Dec.


DOI:10.1177/20552076251346240
PMID:40438193
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12117220/
Abstract

OBJECTIVE: To explore the elements and dilemmas of eHealth literacy among family caregivers of breast cancer patients, providing a reference for improving their caregiving abilities. METHODS: From September to October 2023, a phenomenological research method was adopted. Semi-structured interviews were conducted with 10 family caregivers of breast cancer patients in the Department of Breast and Thyroid Surgery of a tertiary grade A hospital in Xi'an. Braun's thematic analysis method was used for data analysis. RESULTS: Two themes and six sub-themes were extracted. (1) Element characteristics: information acquisition ability, information discrimination ability, and information application ability. (2) Information dilemmas: information overload and chaos, difficulty in judging the authenticity and reliability of information, and obstacles in information application. CONCLUSION: There are many problems in the eHealth literacy of family caregivers of breast cancer patients. Medical staff should have provided guidance on information acquisition, conducted training on information discrimination and application, addressed information overload and chaos, strengthened information supervision, improved the proficiency of using e-communication tools, and provided more professional guidance to enhance their eHealth literacy and reduce their information-related distress.

摘要

目的:探讨乳腺癌患者家庭照护者的电子健康素养要素及困境,为提高其照护能力提供参考。 方法:2023年9月至10月,采用现象学研究方法。对西安市某三级甲等医院乳腺甲状腺外科的10名乳腺癌患者家庭照护者进行半结构式访谈。采用布劳恩主题分析法进行数据分析。 结果:提取出两个主题和六个子主题。(1)要素特征:信息获取能力、信息辨别能力和信息应用能力。(2)信息困境:信息过载与混乱、难以判断信息的真实性和可靠性、信息应用存在障碍。 结论:乳腺癌患者家庭照护者的电子健康素养存在诸多问题。医务人员应在信息获取方面给予指导,开展信息辨别与应用培训,解决信息过载与混乱问题,加强信息监管,提高使用电子通讯工具的熟练度,并提供更专业的指导,以提高其电子健康素养,减轻其信息相关困扰。

相似文献

[1]
Qualitative study on the characteristics and dilemmas of eHealth literacy among family caregivers of breast cancer patients.

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本文引用的文献

[1]
Online health information seeking behavior among breast cancer patients and survivors: a scoping review.

BMC Womens Health. 2025-1-3

[2]
The Effects of a Web Application for Reducing the Risk of Breast Cancer-Related Lymphedema on Health Literacy and Self-Efficacy in Managing Symptoms Among Patients With Breast Cancer.

Int J Nurs Pract. 2024-12

[3]
Quality and readability of online information and materials on post-surgery breast seroma.

Br J Hosp Med (Lond). 2024-6-30

[4]
Enhancing Readability of Online Patient-Facing Content: The Role of AI Chatbots in Improving Cancer Information Accessibility.

J Natl Compr Canc Netw. 2024-5-15

[5]
The needs for digital health and eHeath literacy of cancer patients, caregivers, and healthcare providers: A multicenter, descriptive correlational study.

Eur J Oncol Nurs. 2024-6

[6]
Evaluating online health information utilisation and its psychosocial implications among breast cancer survivors: Qualitative explorations.

Health Promot Perspect. 2024-3-14

[7]
A systematic review and meta-analysis of English language online patient education materials in breast cancer: Is readability the only story?

Breast. 2024-6

[8]
Understanding Breast Cancer Surgery Through Tiktok: an Analysis of Video Content and Viewer Engagement.

Ann Surg Oncol. 2024-7

[9]
Challenges in Obtaining and Seeking Information Among Breast Cancer Survivors in an Asian Country: a Qualitative Study.

J Cancer Educ. 2024-8

[10]
[Cancer incidence and mortality in China, 2022].

Zhonghua Zhong Liu Za Zhi. 2024-3-23

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