Sturm Heidrun, Julia Weber, Tonaco Borges Fabiano, Dickinson Andrew, Sottas Beat, Wennerholm Carina, Andreae Christina, Liljeroos Maria, Jaarsma Tiny, Joos Stefanie, Bauer Antonia
Institute of General Practice and Interprofessional Care, University Hospital Tuebingen, Tuebingen, Germany.
Optimedis AG, Hamburg, Deutschland, Germany.
Int J Health Plann Manage. 2025 May;40(3):538-548. doi: 10.1002/hpm.3892. Epub 2025 Jan 3.
Health care systems are confronted with an increasing burden of (multi-)morbidity and a shortfall of healthcare providers. Coordination and continuity of care in chronic and multi-morbid patient is especially important. As qualitative patient experience data within care processes is scarce, we aim to increase the understanding of chronically ill patient's perspectives by assessing patient experiences in different health systems while treated in primary care. Patients were recruited via GPs from Germany, Sweden, Switzerland, and the British island of Jersey. To ascertain regular healthcare utilisation, inclusion criteria were either a stroke, and/or a myocardial infarction or heart failure during the past year, and an underlying metabolic syndrome. Identical semi-structured interview-guides were used in the respective language. Transcribed interviews were analysed according to inductive-deductive qualitative content analysis. Based on 22 interviews we derived four main categories (patient centeredness, continuity, coordination, access). Overall, healthcare processes were considered positive if information flow was personal and functional. Non-physician staff seemed to create reassurance. A long-lasting doctor-patient relationship was connected to the context of trust and security. Patients were critical of a perceived lack of time, inducing insufficient counselling and information-flow. This international explorative study suggests that patients' experiences can provide important information about care provision. Patients consistently focused more on relational aspects rather than on structures or functions. This has connotations for healthcare planning; for example, by providing non-physician staff to support patients through their care pathway and to improve the cooperation between providers.
医疗保健系统面临着(多重)疾病负担日益加重以及医疗服务提供者短缺的问题。慢性病和多病患者的护理协调与连续性尤为重要。由于护理过程中的定性患者体验数据稀缺,我们旨在通过评估在初级保健中接受治疗的不同卫生系统中慢性病患者的体验,来增进对慢性病患者观点的理解。患者通过德国、瑞典、瑞士和英国泽西岛的全科医生招募。为确定常规医疗保健的利用率,纳入标准为过去一年中患有中风、和/或心肌梗死或心力衰竭,以及患有潜在的代谢综合征。在各自的语言中使用相同的半结构化访谈指南。根据归纳 - 演绎定性内容分析法对转录的访谈进行分析。基于22次访谈,我们得出了四个主要类别(以患者为中心、连续性、协调性、可及性)。总体而言,如果信息流是个性化且有效的,医疗保健过程被认为是积极的。非医师工作人员似乎能带来安心感。持久的医患关系与信任和安全感的背景相关联。患者对明显缺乏时间表示不满,这导致咨询和信息流不足。这项国际探索性研究表明,患者体验可以提供有关护理提供的重要信息。患者始终更关注关系方面而非结构或功能。这对医疗保健规划具有启示意义;例如,通过提供非医师工作人员来支持患者完成其护理路径,并改善提供者之间的合作。