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Fear, Isolation, and Invisibility during the COVID-19 Pandemic: A Qualitative Study of Adults with Physical Disabilities in Marginalized Communities in Southeastern Michigan in the United States.新冠疫情期间的恐惧、孤立与不被关注:对美国密歇根州东南部边缘化社区成年残疾人士的定性研究
Disabilities (Basel). 2021;2. doi: 10.3390/disabilities2010010.
2
Mental Health Client Experiences of Telehealth in Aotearoa New Zealand During the COVID-19 Pandemic: Lessons and Implications.新西兰奥塔哥地区新冠疫情期间心理健康服务对象的远程医疗体验:经验与启示
JMIR Form Res. 2023 May 26;7:e47008. doi: 10.2196/47008.
3
Enacting Mana Māori Motuhake during COVID-19 in Aotearoa (New Zealand): "We Weren't Waiting to Be Told What to Do".在新西兰(Aotearoa)的 COVID-19 疫情期间实施毛利人专属权力:“我们不等被指示该做什么”。
Int J Environ Res Public Health. 2023 Apr 19;20(8):5581. doi: 10.3390/ijerph20085581.
4
Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.残疾人在 COVID-19 大流行期间获得医疗服务的体验:范围综述。
BMC Health Serv Res. 2023 Apr 6;23(1):346. doi: 10.1186/s12913-023-09336-4.
5
Understanding virtual primary healthcare with Indigenous populations: a rapid evidence review.理解虚拟初级保健与原住民群体:快速证据综述。
BMC Health Serv Res. 2023 Mar 29;23(1):303. doi: 10.1186/s12913-023-09299-6.
6
Impact of Locus of Control on Patient-Provider Communication: A Systematic Review.控制源对医患沟通的影响:系统评价。
J Health Commun. 2023 Mar 4;28(3):190-204. doi: 10.1080/10810730.2023.2192014. Epub 2023 Mar 28.
7
A tohu (sign) to open our eyes to the realities of Indigenous Māori registered nurses: A qualitative study.原住民毛利族注册护士现状的启示:一项定性研究。
J Adv Nurs. 2023 Jul;79(7):2585-2596. doi: 10.1111/jan.15609. Epub 2023 Feb 22.
8
Access to Health and Disability Services for New Zealanders With Impaired Vision During the COVID-19 Pandemic 2020-2022.2020 - 2022年新冠疫情期间新西兰视力受损者获得健康与残疾服务的情况
J Vis Impair Blind. 2022 Nov;116(6):830-836. doi: 10.1177/0145482X221144324.
9
Ableism, Human Rights, and the COVID-19 Pandemic: Healthcare-Related Barriers Experienced by Deaf People in Aotearoa New Zealand.残疾歧视、人权与 COVID-19 大流行:新西兰奥克兰的聋人在医疗保健方面遭遇的障碍。
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10
Health Literacy and Difficulty Accessing Information About the COVID-19 Pandemic Among Parents Who Are Deaf and Hard-of-Hearing.聋人和重听家长的健康素养和获取有关 COVID-19 大流行信息的困难。
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重拾本土治疗体系:新冠疫情期间,新西兰奥特亚罗瓦以毛利人为中心的医疗服务对残疾毛利人的应对经验。

Reclaiming Indigenous systems of healing: experiences of disabled Māori of Māori-centric health service responses in Aotearoa New Zealand during the COVID-19 pandemic.

作者信息

Roguski Michael, Officer Tara N, Good Gretchen, McBride-Henry Karen

机构信息

Kaitiaki Research and Evaluation, Wellington, New Zealand.

School of Nursing, Midwifery, and Health Practice, Wellington Faculty of Health, Victoria University of Wellington, Wellington, New Zealand.

出版信息

BMC Health Serv Res. 2025 Jan 6;25(1):29. doi: 10.1186/s12913-024-12012-w.

DOI:10.1186/s12913-024-12012-w
PMID:39762902
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11706141/
Abstract

BACKGROUND

The impact of the pandemic on Indigenous and disabled people's access to healthcare has resulted in significant disruptions and has exacerbated longstanding inequitable healthcare service delivery. Research within Aotearoa New Zealand has demonstrated that there has been success in the provision of healthcare by Māori for their community; however, the experiences of tāngata whaikaha Māori, disabled Māori, have yet to be considered by researchers.

METHODS

Underpinned by an empowerment theory and Kaupapa Māori methodology, this research explores the lived realities of tāngata whaikaha Māori or their primary caregivers. Twenty in-depth interviews gathered participants' lived experiences, and a discursive lens was brought to the narratives of tāngata whaikaha Māori who have accessed, and received, culturally responsive healthcare services during the pandemic.

RESULTS

Positive experiences accessing primary and secondary services were associated with Māori-centred healthcare and seamless engagement with support services that were founded upon the active dismantling of structural inequities and the prioritisation of Māori cultural values in their care delivery, inclusive of tino rangatiratanga (sovereignty), and mātauranga Māori (Māori knowledge).

CONCLUSIONS

This study provides a novel and solid foundation for comprehending how healthcare can be realigned to cater to the requirements of disabled Indigenous populations.

摘要

背景

疫情对原住民和残疾人获得医疗保健的影响导致了重大干扰,并加剧了长期存在的医疗服务不公平现象。新西兰的研究表明,毛利人为其社区提供医疗保健取得了成功;然而,毛利残疾人(tāngata whaikaha Māori)的经历尚未得到研究人员的关注。

方法

本研究以赋权理论和毛利方法(Kaupapa Māori methodology)为基础,探讨毛利残疾人或其主要照顾者的生活现实。通过20次深入访谈收集了参与者的生活经历,并对在疫情期间获得并接受了具有文化适应性的医疗服务的毛利残疾人的叙述进行了话语分析。

结果

获得初级和二级服务的积极经历与以毛利人为中心的医疗保健以及与支持服务的无缝衔接有关,这些服务基于积极消除结构性不平等以及在提供护理时优先考虑毛利文化价值观,包括自决权(tino rangatiratanga)和毛利知识(mātauranga Māori)。

结论

本研究为理解如何调整医疗保健以满足残疾原住民的需求提供了一个新颖而坚实的基础。